i AM SO FED UP i COULD SCREAM. I just got off the phone with my neuro who gave me no advice and had to "run" cause a call was coming in , I guess from someone much more important than me. I knew I shouldn't have called. I burst into tears. I just need someone to tell me what kind of doctor to go to for help here! I was asking his opionion!

Long story short: I have dx of fibro and cfs, and POTS, and also being tested for adrenal stuff...and I have some bad disks causing leg pain. Last fall I noticed my arms becoming more fatigued doing "over the head" activities. Then one day in December I had a sudden first time bad flare of pain in left arm, shoulder neck area. My neuro did an mri of c spine which showed sligt herniation and mri of thoracic area to rule out TOS. Then the pain kind of diminished....but has to this day flared up a bit and sometimes worse on left side,,,,especially if I sleep on it. My neck pain has gotten worse and tingles/vibrates sometimes. Also had a real vertigo dizzy feeling when severe pain attack happened. So now my arms are getting more and more fatigued (both) I cannot do repetative things at all, I can barely whisk an egg. or brush teeth, etc, . My neuro did do emg and ncs studies on my arms which were normal. He doesn't think my neck disks are causing this. Something weird is going on. He said something about getting punch biopsy from the neruo i saw at JOhns Hopkins re: my shakes (another problem) and I said would that affect my whole body? I have some kind of foot neuropathy. He said MAYBE> So I said should I see anyone else about this like an ortho doctor or neuro surgeon and he did say maybe we should consult about this again....but acted like he had done all he could. He did manage to mutter out ortho doc as he was Hanging up on me!!! I felt very belittled. I was asking him for his opionion, I even said I know no one else to ask about this. and he acted like I was just taking up his darn precious time. This was a 3 to 4 min talk. I don't like going to him but the 4 other neuros were even worse. I just want someone to figure this out@!!!!!!!!!!!!!!!!!!!!!!!!!!PLEASE HELP