I have two docs hinting about IVIG for me in the future...I'm apprehensive. I have low platelets and that is the main reason. I have issues with lupus and other autoimmune problems.

What is the main reason you get your tx?

That sounds awful that your pain worsens, even if it is temporary. I'm starting to look around on line and all I've heard about this tx is that it's very important to hydrate fully before receiving IVIG and that it is less likely to cause a headache if it is done slowly.

However, one woman said that she has to take a small amount of a steroid before tx to prevent aches and pains.

What has your doctor said about this? Is there anything that can be done to help?

I hope folks out there with experience about this will post!!!

Thanks for your answer. Please don't be afraid to try it. It does help my neuropathy after the few days of pain and nausea.
I do hydrate and they give me fluids before and after the Rx. I did use to get steroids with it but developed high b/p so we stopped those. I'm ok without them anyway.