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Old 10-10-2018, 05:40 PM #6
6thCranialNerve 6thCranialNerve is offline
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Join Date: Jul 2018
Location: NC
Posts: 64
5 yr Member
6thCranialNerve 6thCranialNerve is offline
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Join Date: Jul 2018
Location: NC
Posts: 64
5 yr Member
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Quote:
Originally Posted by ntm468 View Post
I forgot to add: yes they run mine about as slowly as possible. Takes around 5 hours. They have very comfortable recliners and by now I mostly nap.


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You can have your infusion at home. I'm an RN and have administered IVIG in the home setting for over a decade. But...I'm on disability now...I have Myasthenia Gravis...and I'm getting IVIG at home! It is so weird that I've treated so many patients with IVIG at home and now I am getting it. I am a cancer survivor and post Stem Cell TP. I've only had my first two days of "loading". 100GM each day. I didn't have a headache; but had stomach issues. That may have been starting before the infusion. My next one is 10/27. I've seen it do so much for people so I'm praying it will help me.
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