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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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08-28-2006, 06:45 PM | #1 | |||
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Senior Member
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Cyndee Miller's Lupus Home Page
http://www.public.asu.edu/~cyndee74/ Lupus Foundation of America http://www.lupus.org/ Lupus Foundation of New England http://www.lupusne.org/ LupusNY.org - Systemic Lupus Erythematosus Foundation http://www.lupusny.org/ Lupus/Systemic Lupus Erythematosus (SLE) http://www.arthritis.org/conditions/...nter/lupus.asp Lupus UK http://www.lupusuk.com/ The Lupus Site http://www.uklupus.co.uk/ Lupus A free collection of articles about lupus published in The New York Times. http://topics.nytimes.com/top/news/h...nyt-classifier Lupus Support Group Message Board - Lupus Bulletin Board http://www.wehavelupus.com/ Patient Education - Systemic Lupus Erythematosus http://www.rheumatology.org/public/f...ts/sle_new.asp The Many Shades of Lupus http://www.niams.nih.gov/hi/topics/l...ades/index.htm |
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09-17-2006, 02:06 PM | #2 | ||
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Senior Member (jccglutenfree)
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Celiac disease is the only autoimmune disease that has a known cause...an abnormal immune system response to food containing gluten (wheat, barley, rye). It is also associated with other autoimmune disease, especially autoimmune thyroid disease and Type 1 Diabetes. Some research suggests that gluten sensitivity may play a causitive role in the development of other autoimmune disease, and there are many interesting reports in medical literature of various other diseases improving or resolving once the celiac/gluten sensitive patient begins a gluten free diet.
From: Emerging concepts in celiac disease by William Treem, MD Quote:
For more info see: The Gluten File Especially: At Risk Population for Gluten Sensitivity/Celiac Disease Type 1 Diabetes and Autoimmune Thyroid Disease Multiple Sclerosis Other Autoimmune Disease ~ Addison's, Liver, Kidney, Colitis, Gastritis, Rheumatoid Arthritis, Lupus, Sjogrens, Sarcoidosis, Thrombocytopenia, Vitiligo, Alopecia Areata
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. Last edited by jccgf; 09-18-2006 at 09:57 PM. |
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10-29-2006, 12:33 PM | #3 | |||
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Senior Member
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Good sites for Sjogren's sufferers:
for a good forum sponsered by the Sjogrens Syndrome Foundation: www.sjogrensworld.org for relief from dry eyes at night, I've used these for two+ years: www.eyeeco.com good dryeye forum: www.dryeyezone.com Billye |
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10-31-2006, 10:25 AM | #4 | ||
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Magnate
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www.lizajane.org as a reference site. While directed towards spinal and PN issues, I believe LJ [AKA NYCSilk] is expanding relevant tests for other neuro areas.
Since ANY neuro diagnostic process is one of elimination...that of excluding anything truly diagnosable, the LJ charts are invaluable for a confused person, or even one sort of in the know [meaning, a person w/o a med degree], to learn where they stand in terms of that nasty word called TESTING! Second opinions and further tests are cheap, I know because I did just that [before I was 'web' conversant] and I am sure I'd be a doddering, miserable, wheelchair-bound, mind-blasted from meds, non-functioning being without those second opinions! There's a lot of 'language' in those charts, learn them, use your instincts and don't give up! I was LUCKY I found docs that got the tests for me that I needed and the treatments as well. Another primer of what neuros look for is at www.neuroexam.com Work your way from the intro on down . Knowing what they are initially looking for by doing some seemingly silly stuff is insight to the problems they are REALLY looking for - j |
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"Thanks for this!" says: | Colin Street (10-08-2013) |
11-18-2006, 03:44 PM | #5 | ||
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Banned User
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05-24-2007, 09:56 PM | #6 | ||
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Magnate
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Below are a list of site I've dug up for others about IVIG -if you want more technical info, PM me.
http://www.igliving.com:80/index.html http://www.news-medical.net:80/?id=19244 http://www.news-medical.net:80/?id=19244 http://www.infusionsystems.net/artic...UseofIVIG.html http://qjmed.oxfordjournals.org:80/c...full/95/11/717 http://www.resourcenurse.com:80/feature_ivig.html http://www.iggamerica.com:80/control...px?target=FAQs http://ruralnurseorganization-dl.sli...lain-barre.htm Please read these, there's lots of good basic and some more practical stuff on IVIG and how it should be given. Solid information should be the basis of deciding whether to try it or not. I am glad I did! - j |
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10-10-2007, 10:30 PM | #7 | ||
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Magnate
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for CIDP and other stuffs:
http://pns.ucsd.edu/Guidelines_CIDP.pdf http://pns.ucsd.edu/Guidelines_parap...neuropathy.pdf http://pns.ucsd.edu/Guidelines_multi...neuropathy.pdf The host site is: http://pns.ucsd.edu:80/ It has links to some free articles published ...Good stuff...!!!!!!!!!!!!!! - j |
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11-26-2007, 09:06 PM | #8 | ||
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Magnate
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Apparently the European Conference last year or so about 'defining' CIDP is now becoming practice. This is a very awesome website! - j
http://www.cidpinfo.com/ |
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07-11-2009, 09:14 AM | #9 | |||
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Administrator
Community Support Team
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excellent resource website for P.A.N.D.A.S. (Pediatric Autoimmune Illness Associated with Streptococci)
http://www.pandasnetwork.org/index.html
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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11-14-2009, 11:42 PM | #10 | ||
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Magnate
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This is the best of the updates regarding diagnosis of some autoimmune neuropathies:
http://www.guidelines.gov/search/sea...ch=CIDP&num=20 The first one is good reading, the others more of the same. Nothing newer than these tho so far.... keeping an eye out on it for the future tho! - j |
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