Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


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Old 05-07-2016, 05:02 PM #1
whiteaa whiteaa is offline
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Confused Just hoping this will ring a bell for someone

Hello,

Usually I post in the RSD forum, but maybe someone in this forum can help.

I am 24 and have been having a host of health issues. I have been depressed for most of my life, and around age 18 I had very severe fatigue that was attributed to depression and resolved with a Wellbutrin (but I'm fine without Wellbutrin now). 5 years ago I developed heart palpitations and was diagnosed with Vasovagal Syncope. Around the same time, I got my first flare of eczema as well. Then 1.5 years ago I had a minor sports injury that turned into Complex Regional Pain Syndrome, a chronic pain condition that many consider to be autoimmune. And now in the past few months I have developed gastroparesis.

I keep asking all my doctors why I am having so many different autonomic nervous system problems develop and if there is an underlying condition that is causing them, but my doctors don't seem particularly motivated to figure it out. If I want to check for something, I have to DEMAND the tests.

I have been checked for Hashimoto's (using free T3/4 and autoantibody tests), other thyroid issues (using a thyroid cascade test), nutrition imbalances, Lyme Disease, and RA and I had an ANA test and everything keeps coming back "perfect".

Does my symptom progression sound similar to anything anyone has experienced or heard of on this forum? Any leads would be much appreciated.

Thanks!!!
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Old 05-08-2016, 03:00 AM #2
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kiwi33 kiwi33 is offline
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kiwi33 kiwi33 is offline
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There is some evidence that CRPS/RSD can be associated with elevated ANA titres (http://www.hindawi.com/journals/mi/2015/718201/) though this does not seem to apply to you.

There is also evidence that people with CRPS/RSD often have autoantibodies specific for components of the autonomic nervous system (http://www.thblack.com/links/RSD/Aut...eDisordREV.pdf,

I hope that this will be of some help in asking your health care team informed questions.
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Old 05-08-2016, 09:05 AM #3
whiteaa whiteaa is offline
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Quote:
Originally Posted by kiwi33 View Post
There is some evidence that CRPS/RSD can be associated with elevated ANA titres (http://www.hindawi.com/journals/mi/2015/718201/) though this does not seem to apply to you.

There is also evidence that people with CRPS/RSD often have autoantibodies specific for components of the autonomic nervous system (http://www.thblack.com/links/RSD/Aut...eDisordREV.pdf,

I hope that this will be of some help in asking your health care team informed questions.
thanks kiwi33!
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Old 06-30-2016, 08:29 PM #4
thowell thowell is offline
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My daughter has shared quite a few of your symptoms and was recently diagnosed with Mast Cell Activation Syndrome. Look into it and see what you think. There is quite a bit of research that is now emerging on MCAS.
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