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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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08-12-2016, 09:20 AM | #1 | |||
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Junior Member
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Thanks so much. I was really hoping you would still be here. Checking the link soon as I post this. I can't remember if my GP tested polymositis, but I will check tomorrow as he gives me copies of all my blood tests. Do you have any insight as to why there are two ANA positives? Does that mean two diseases? I haven't seen my rheumatologist since getting those results back, my GP slipped them to me. I think I would have more support seeing an immunologist. The problem I always encounter with rheumies is that they don't like to over ride another rheumies diagnosis. He did find a nodule on my right lung. I'm hoping that is just scar tissue from when I broke my ribs and punctured my lung. He will check when I bring in those xrays to compare. So, I wonder if he will rule scleroderma out after 30 years, when he reviews my labs. Do you know if those scleroderma panels are definite, or can one fall into serum negative scleroderma? You don't have to reply tonight lol, I am just happy you are still here. You understand what I'm saying, and show me where to find answers, and that helps me so much. I feel like I'm going crazy sometimes when nobody believes me how weak I feel. They haven't been testing the right parts of my body, just the scleroderma parts.
Thanks for kind words about my mum. |
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08-13-2016, 02:59 AM | #2 | |||
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Grand Magnate
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This is a bit outside the stuff that I know about professionally but my impressions are:
ANA staining patterns can be suggestive of one or more auto-immune diseases but they are not diagnostic. Sero-negative (ie, there are no detectable antibodies specific for the various nuclear antigens, Ro52 and others) scleroderma is known. My guess is that this is because it arises from over-production of collagen (for reasons which are poorly understood), sometimes but not always with an auto-immune aspect. I think that your idea of getting a referral to a clinical immunologist is a good one. You could collect all of the clinical paperwork from your GP, show it to the clinical immunologist and see what s/he thinks.
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Knowledge is power. |
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"Thanks for this!" says: | KirraJade (08-13-2016) |
08-13-2016, 08:35 AM | #3 | |||
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Junior Member
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Yeah, it's really confusing. I never knew of the speckled ANA, so it really seems there is a second autoimmune disease that's never been diagnosed, or has appeared within the last year or so. That may be causing me to feel as bad as I do. I see GP on Tuesday, so will ask for a referral to see immunoligist (clinical). Hopefully they have one in Adelaide. I am making a list, and begging to be helped. At least there must be something I can take to feel better than I do. Life should not be this cruel in today's world. I also wish my friends would understand instead of thinking I need to snap out of it. Ironically, I'm the first one who turns up for them when they get sick or hurt. I have not been offered help from one of them. I'm a bit hurt over that. I will update each time I get news, and keep this thread going. One day, someone may find that my journey helps them.
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