Go Back   NeuroTalk Support Groups > >

Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]

Steroid resistant Hashimoto's Enchapalopathy

Reply
 
Thread Tools Display Modes
Old 02-06-2017, 10:07 AM   #1
lobsterfan
Guest
 
Posts: n/a
Default Steroid resistant Hashimoto's Enchapalopathy

I've experienced serious neurological symptoms for the past year or more and after extensive testing, including multiple MRIs (all mainly normal), several spinal taps (all abnormal for high protein) and extensive blood tests that have ruled out other conditions like neoplasms I've been told I likely have some form of Hashimoto's Encephalopathy even though I don't have the cognitive dysfunction normally associated with the condition. I also have Graves Disease, which was diagnosed several years ago. My thyroid was removed to control the symptoms. MS and ALS/PLS have been ruled out relating to my current symptoms.

I now suffer from ataxia and abnormal gait, muscle spasms, double vision, intermittent although frequent "brain fogginess" and, increasingly, headaches. Steroids, administered both as high-dose IV and later oral Prednisone, failed to resolve these symptoms and actually made them worse. I've had a two-day session of IVIG treatment, which didn't resolve the symptoms either but to some extent did seem to limit further deterioration. My neurologist is ordering more IVIG treatment, to begin in the near future, but there seem to be no magic answers to all of this. Any ideas out there?
  Reply With Quote
Old 02-07-2017, 02:57 AM   #2
kiwi33
Magnate
Community Welcome Team
 
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 2,231
My Mood: Steroid resistant Hashimoto's Enchapalopathy
Default

Hi lobsterfan

Welcome to NeuroTalk.

My understanding is that Hashimoto's Encephalopathy usually responds to oral steroids though the optimal dose of these is not known (it might differ between different people).

This might help you in discussing this with your neurologist Hashimoto's encephalitis | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program.

All the best.
__________________
Knowledge is power.
kiwi33 is offline   Reply With Quote
Reply

Tags
abnormal, ivig, resolve, ruled, symptoms

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Hashimoto's...Do I have it? spongepolka Autoimmune Diseases 13 06-03-2015 01:57 PM
For anyone with Hashimoto's MetalMX Autoimmune Diseases 10 03-24-2014 07:01 AM
OT: my daughter has Hashimoto's; and ANA Stellatum Myasthenia Gravis 2 05-22-2011 08:15 AM
What are your Hashimoto's symptoms? MetalMX Autoimmune Diseases 4 09-26-2009 07:31 PM
Hashimoto`s encephalopathy HEmale General Health Conditions & Rare Disorders 1 02-10-2009 10:02 AM


All times are GMT -5. The time now is 04:41 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy