NeuroTalk Support Groups - Axonal Sensory Neuropathy IgM TS-HDS

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Autoimmune Diseases (https://www.neurotalk.org/autoimmune-diseases/)

- - Axonal Sensory Neuropathy IgM TS-HDS (https://www.neurotalk.org/autoimmune-diseases/250509-axonal-sensory-neuropathy-igm-ts-hds.html)

Dimenter

10-21-2020 09:17 AM

Hi! Were diagnosed with the same problem (autoimmun small fiber neurophaty with TS-HDS and FGFR3 Autoantibodies ). Is there possibly someone from europe who is receiving ivig treatment? Is it possible to self-finance treatment in Europe? Thanks in advance!

Neurauto

01-19-2021 10:49 PM

I tested positive for TS-HDS as well.

For some reason the search in this forum shows zero results for "ts-hds"

Jomar

02-06-2021 03:39 PM

Try "antibody test" for the search word..

miss Nice

05-22-2021 08:25 AM

Quote:

Originally Posted by mlobeck7 (Post 1282329)

I was just diagnosed with this ts-hds antibody and polyneuropathy with small fiber. I also am inpatient at Aunshutz right now. I would love to talk to you since this is such a rare thing to have. I'm still in the suffering stage, but your post gives me hope! I am new to this site and not even sure you can see this but I hope you can. Any info. would be great! Thank you

I would be interested in talking to you. I have not been diagnosed yet but also am going to the university of Colorado. My TS-HDS is abnormally high in the 31,000 and have muscle wasting though with monoclonal IgG. Any similar things you have id like you to share some with me please.

GAGME

05-24-2021 10:38 PM

I have 29K TS-HSD and no monoclonal. I was just told I have severe sensorimotor neuropathy , and it appears motor nerves can also been affected even though most studies show SFN only. I'm almost chair dependent, and its going fast . My doc is lost with it. BTW, it can cause capillary pathology and destroys blood supply to muscles and nerves. All in the literature.

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