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Old 10-21-2020, 09:17 AM #21
Dimenter Dimenter is offline
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Hi! Were diagnosed with the same problem (autoimmun small fiber neurophaty with TS-HDS and FGFR3 Autoantibodies ). Is there possibly someone from europe who is receiving ivig treatment? Is it possible to self-finance treatment in Europe? Thanks in advance!
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Old 01-19-2021, 10:49 PM #22
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I tested positive for TS-HDS as well.

For some reason the search in this forum shows zero results for "ts-hds"
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Old 02-06-2021, 03:39 PM #23
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My Mood: Axonal Sensory Neuropathy IgM TS-HDS
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Try "antibody test" for the search word..
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Old 05-22-2021, 08:25 AM #24
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Quote:
Originally Posted by mlobeck7 View Post
I was just diagnosed with this ts-hds antibody and polyneuropathy with small fiber. I also am inpatient at Aunshutz right now. I would love to talk to you since this is such a rare thing to have. I'm still in the suffering stage, but your post gives me hope! I am new to this site and not even sure you can see this but I hope you can. Any info. would be great! Thank you
I would be interested in talking to you. I have not been diagnosed yet but also am going to the university of Colorado. My TS-HDS is abnormally high in the 31,000 and have muscle wasting though with monoclonal IgG. Any similar things you have id like you to share some with me please.
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Old 05-24-2021, 10:38 PM #25
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I have 29K TS-HSD and no monoclonal. I was just told I have severe sensorimotor neuropathy , and it appears motor nerves can also been affected even though most studies show SFN only. I'm almost chair dependent, and its going fast . My doc is lost with it. BTW, it can cause capillary pathology and destroys blood supply to muscles and nerves. All in the literature.
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