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Old 05-09-2019, 04:50 PM #1
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kiwi33 kiwi33 is offline
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kiwi33 kiwi33 is offline
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Hi NRose

Welcome to NeuroTalk .

TS-HDS is a component of the surfaces of neurons. What can happen is your immune system produces antibodies of the IgM class which react with it; this can lead to small fibre neuropathy.

As others have mentioned above, one way of treating this is use of IVIg (intravenous infusion of antibodies mainly of the IgG class).

This slightly technical link explains some of these ideas IVIg for Small Fiber Neuropathy With Autoantibodies TS-HDS and FGFR3 - Full Text View - ClinicalTrials.gov .

Best wishes.
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Old 05-09-2019, 10:49 PM #2
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Default Thanx

I appreciate the response, Kiwi!!!! Today I faxed my medical records to Dr. Levine who is one of the collaborators in the study you referred to me to read. I do reside close to him(a state next door) ;consequently, when it was suggested by someone at Washington University Neuromuscular Clinic to contact him, I thought about it. That was two years ago and since my symptoms have changed I am finally pursuing some answers. I am only hoping he will consider taking me as a patient.

Sounds as if some of the people participating in this thread are in this study group. Thanks again! N
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