Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


advertisement
Reply
 
Thread Tools Display Modes
Old 10-21-2020, 09:17 AM #21
Dimenter Dimenter is offline
New Member
 
Join Date: Oct 2020
Posts: 1
3 yr Member
Dimenter Dimenter is offline
New Member
 
Join Date: Oct 2020
Posts: 1
3 yr Member
Default

Hi! Were diagnosed with the same problem (autoimmun small fiber neurophaty with TS-HDS and FGFR3 Autoantibodies ). Is there possibly someone from europe who is receiving ivig treatment? Is it possible to self-finance treatment in Europe? Thanks in advance!
Dimenter is offline   Reply With QuoteReply With Quote

advertisement
Old 01-19-2021, 10:49 PM #22
Neurauto Neurauto is offline
Newly Joined
 
Join Date: Jan 2021
Posts: 2
3 yr Member
Neurauto Neurauto is offline
Newly Joined
 
Join Date: Jan 2021
Posts: 2
3 yr Member
Default

I tested positive for TS-HDS as well.

For some reason the search in this forum shows zero results for "ts-hds"
Neurauto is offline   Reply With QuoteReply With Quote
Old 02-06-2021, 03:39 PM #23
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,721
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,721
15 yr Member
Default

Try "antibody test" for the search word..
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 05-22-2021, 08:25 AM #24
miss Nice miss Nice is offline
Newly Joined
 
Join Date: May 2021
Posts: 1
3 yr Member
miss Nice miss Nice is offline
Newly Joined
 
Join Date: May 2021
Posts: 1
3 yr Member
Default

Quote:
Originally Posted by mlobeck7 View Post
I was just diagnosed with this ts-hds antibody and polyneuropathy with small fiber. I also am inpatient at Aunshutz right now. I would love to talk to you since this is such a rare thing to have. I'm still in the suffering stage, but your post gives me hope! I am new to this site and not even sure you can see this but I hope you can. Any info. would be great! Thank you
I would be interested in talking to you. I have not been diagnosed yet but also am going to the university of Colorado. My TS-HDS is abnormally high in the 31,000 and have muscle wasting though with monoclonal IgG. Any similar things you have id like you to share some with me please.
miss Nice is offline   Reply With QuoteReply With Quote
Old 05-24-2021, 10:38 PM #25
GAGME GAGME is offline
Newly Joined
 
Join Date: May 2021
Posts: 1
3 yr Member
GAGME GAGME is offline
Newly Joined
 
Join Date: May 2021
Posts: 1
3 yr Member
Default

I have 29K TS-HSD and no monoclonal. I was just told I have severe sensorimotor neuropathy , and it appears motor nerves can also been affected even though most studies show SFN only. I'm almost chair dependent, and its going fast . My doc is lost with it. BTW, it can cause capillary pathology and destroys blood supply to muscles and nerves. All in the literature.
GAGME is offline   Reply With QuoteReply With Quote
Reply

Tags
axonal, feel, months, ts-hds, wondering


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Axonal sensory Stephen Peripheral Neuropathy 1 01-26-2015 07:09 PM
Very mild axonal sensory Stephen Peripheral Neuropathy 10 10-01-2014 07:26 PM
axonal sensory polyneuropathy suzybear New Member Introductions 4 05-03-2014 07:52 PM
Sensory Axonal Neuropathy BonDon Peripheral Neuropathy 8 04-03-2014 09:21 AM
Axonal Sensory Motor Polyneuropathy - ? inspirations Peripheral Neuropathy 23 07-08-2013 05:11 PM


All times are GMT -5. The time now is 06:44 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.