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CNS Vasculitis

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Old 05-29-2018, 06:47 PM   #1
kell.steve@bigpond.
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Default CNS Vasculitis

I have been told by 4 Neurologists that they feel I have CNS Vasculitis, this is after 3 years of investigations after finding white matter change to my brain. They do not want to do a brain biopsy yet to confirm? I really want to talk to people who may be affected by this disease, I have no idea of what my future is going to hold. If there are any preventions I can put in place. I really want to connect with people who know about this disease.
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Old 05-29-2018, 09:22 PM   #2
kiwi33
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The information here might help you to discuss things with the neurologists you have seen Diagnosis and treatment of cerebral vasculitis.
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Old 05-30-2018, 03:11 AM   #3
kell.steve@bigpond.
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Thankyou for your reply.. I still do not understand much of that. It is 6 months before I see my neurologist again. Really wanting to find others with this disease.
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