Okay. I will ask my mum to look into it.

What do you guys think about the possibility of PANS?

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Hi there,
PANS or PANDAS is always a possibility if there is an infection connection?

Here is some info that may be helpful:
PANDAS/PANS Archives - ACN Latitudes

Yeah. I get lots of infections. However all autoimmune tests came negative...

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Have they done very specific tests for PANDAS or other PANS markers?

Unless they run the correct titres, for example for specific strep antibodies in PANDAS, it can often be missed.

No they haven't. My mum is asking my neurologist on Wednesday. I'm so nervous!!

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Don't be nervous! It's better to know and then be able to treat in the most effective way.
Do show your mom that link I posted for you.
I have many more resources for PANS/Pandas if needed.

Im nervous coz of the already FND diagnosis. And i will.
I've also seen the documentary my kids not crazy. Will show her that too

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Okay. I will look at it

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It looks like my symptoms, but what about the psychiatric symptoms...

I'm bed bound and desperately trying to find out what's wrong. I have ehlers danlos syndrome (eds) and i have had severe back and head pain for years. I'm constantly having to turn over due to back pain. Also my neck got locked in one position and has been stiff ever since. Often i find that my back wants to lay one way and my neck wants me to lay the other. I also have had severe sickness and have had to be taking anti sickness ever since i got d&v. Ive hit my head several times and have had concussion. I have audit and visual hallucinations and eye sight issues. Dizziness. I have had stuff run down my throat causingvit to feel blocked for years. Sudden behavioral issues/ changes. I now can't even sit up or keep my neck up straight. Now i can't sit up without lower back pain and sickness. Agitation. Numbness in hands and legs. Can't feel pain. Sensitive to light. Memory issues. Panic attacks. Can't feel emotions, yet with a flick of a switch, I'm angry or crying. I have no idea why after. Aggression. Anorexia. Depression. Autism. Virtigo. Brain saps. Not responding to pain meds and i can't have morphine as that doesn't work and makes me sick. Nothing works. Normal mri and blood tests testing for antibodies. Frequent infections. Resistant to most antibiotics now. Also i have constant ringing in my ears. Also I've had a really bad ear infection, where i lost my taste buds and sense of smell. I've lost my taste buds now and sense of smell.
My neurologist has diagnosed me with FND but i disagree!
I'm aware that not all my symptoms are relivent, but i thought I'd add everything

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I wrote this

Could i have this? I'm bed bound and desperately trying to find out what's wrong. I have ehlers danlos syndrome (eds) and i have had severe back and head pain for years. I'm constantly having to turn over due to back pain. Also my neck got locked in one position and has been stiff ever since. Often i find that my back wants to lay one way and my neck wants me to lay the other. I also have had severe sickness and have had to be taking anti sickness ever since i got d&v. Ive hit my head several times and have had concussion. I have audit and visual hallucinations and eye sight issues. Dizziness. I have had stuff run down my throat causingvit to feel blocked for years. Sudden behavioral issues/ changes. I now can't even sit up or keep my neck up straight. Now i can't sit up without lower back pain and sickness. Agitation. Numbness in hands and legs. Can't feel pain. Sensitive to light. Memory issues. Panic attacks. Can't feel emotions, yet with a flick of a switch, I'm angry or crying. I have no idea why after. Aggression. Anorexia. Depression. Autism. Virtigo. Brain saps. Not responding to pain meds and i can't have morphine as that doesn't work and makes me sick. Nothing works. Normal mri and blood tests testing for antibodies. Frequent infections. Resistant to most antibiotics now. Also i have constant ringing in my ears. Also I've had a really bad ear infection, where i lost my taste buds and sense of smell. I've lost my taste buds now and sense of smell.
Also, i had urinary problems growing up and found that as soon as i laughed or bounced on my trampoline, I'd end up going. It was very embarrassing and i had to take this little blue tablet to help (can't remember what it was called)
My neurologist has diagnosed me with FND but i disagree!
I'm aware that not all my symptoms are relivent, but i thought I'd add everything

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