Hi Horselover.

Functional Neurological Disorder (FND) is very real, especially for those who have it. I know someone who has had FND since she was in 6th grade, she is now 28. This young lady is a friend of my daughter's. Her parents spent thousands of dollars and trips to out of state hospital trying to find a reason for her symptoms. When a Dr. finally gave the diagnosis of FND her parents as well as myself did not believe him. Unfortunately the diagnosis was correct.

You disagree with your diagnosis of FND, however, there would be a good reason for a Neurologist to give such a diagnosis. Working with your Healthcare Professionals to start finding ways to treat your FND could be very beneficial for you. If you continue to fight the diagnosis because you choose not to accept it you continue as you are.

Information about Functional Neurological Disorder:

Welcome - neurosymptoms.org

Symptoms - FND Hope International

I don't believe him. He based it on me not being able to talk sometimes and can others; I'm AUTISTIC and so there's such a thing called SELECTIVE MUTISM! I mean HELLO!

Also he based it on my leg movements. Well i still struggle with that and i DON'T agree!

They could've at least tested for my theory!!

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You sound like there are several issues you may have. The first thing I noticed was how PTSD you sound, maybe I wrong but worth checking out. I went PTSD after stopping Lyrica the withdrawals can be that bad. If you do have some PTSD it will interfere with your ability to properly discern all your symptoms. Good Luck I have been trying for over 6 years to get an appt with a neurologist but when they find out it started with Lyrica the cancel my appt. I have tried in 8 states and they just do not like to deal with the adverse effects, I have referrals from 3 different doctors but still no appt.

Hi. Sorry, it's been so long!
Forgot about taptalk completely =S

Strangely enough, my parents think I have PTSD too..

Will ask to be tested

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Hi Horselover,
I don't know if you're still searching for answers but if you have indeed been diagnosed with Ehlers Danlos syndrome I have a suggestion for what you may be suffering from: cervical cranial instability. It's not uncommon with EDS, about 1 in 15 develop it, and it can cause many of the symptoms you describe. Have a look into it. It's a long shot, but this may be the root of at least some of your problems - and there is an albeit expensive surgery that can fix it. All best, Flex.