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Old 03-06-2022, 06:15 AM #1
FlexMissile99 FlexMissile99 is offline
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Join Date: Mar 2022
Location: UK.
Posts: 8
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FlexMissile99 FlexMissile99 is offline
Junior Member
 
Join Date: Mar 2022
Location: UK.
Posts: 8
2 yr Member
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Hi Horselover,
I don't know if you're still searching for answers but if you have indeed been diagnosed with Ehlers Danlos syndrome I have a suggestion for what you may be suffering from: cervical cranial instability. It's not uncommon with EDS, about 1 in 15 develop it, and it can cause many of the symptoms you describe. Have a look into it. It's a long shot, but this may be the root of at least some of your problems - and there is an albeit expensive surgery that can fix it. All best, Flex.
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