Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


advertisement
Reply
 
Thread Tools Display Modes
Old 05-24-2021, 05:12 PM #1
Dannibal's Avatar
Dannibal Dannibal is offline
Junior Member
 
Join Date: May 2021
Location: Pennsylvania, US
Posts: 11
1 yr Member
Dannibal Dannibal is offline
Junior Member
Dannibal's Avatar
 
Join Date: May 2021
Location: Pennsylvania, US
Posts: 11
1 yr Member
Question Pulmonary emboli and autoimmune disorders?

I've posted a few places in this forum, mostly about the nerve pain I get in my thighs (mostly my right, but sometimes my left) and about my chronic migraines.

But...I was just released from the hospital today (was admitted Wednesday) and I'm trying to figure out if this was caused by an autoimmune disorder (and if the nerve pain and chronic migraines, oh and syncope...as I also have that issue...can all be related).

A little more than 10 years ago, I was hospitalized with 3 pulmonary emobli (aka blood clots in my lungs). I was in the hospital for a number of days, receiving heparin injections and was discharged with coumadin. After a year, they took me off the coumadin.

This past Wed, I once again was hospitalized with "extensive acute bilateral pulmonary artery emboli involving all lung lobes" as well as "deep vein thrombosis left lower extremity involving the popliteal vein, posterior tibial vein, peroneal vein and gastrocnemius veins." Due to the amount of clots, they opted to put a catheter in my neck and administer "clot busting" meds directly to my lungs for 24 hours, as well as put a filter in to prevent the clots still in my leg from moving to my lungs. (The catheter was removed after 24 hours; the filter will stay in for a few months). I was also on a heparin IV during my stay in the hospital and was discharged today with Xarelto.

I know a ton of tests were done to try to figure out what caused the clots. The first time around, I know they did a bunch of tests also, but they never determined the cause.

I did notice in my results (from this time around) that have come back so far (on the app), that one of the tests says this: "A Lupus Anticoagulant is detected since one of the two confirmatory tests is positive."

I'm not 100% certain what this means. I do know it also recommends getting retested in 12 weeks for this "lupus anticoagulant."

Anyhow....I'm just wondering if anyone has knowledge of what the "lupus anticoagulant" result means.

Also, wondering if anyone knows what (if any) autoimmune disorders could cause blood clots, chronic migraines, low blood pressure and syncope (and maybe nerve pain...since not sure if that is related or not)?
Dannibal is offline   Reply With QuoteReply With Quote

advertisement
Old 05-25-2021, 06:43 AM #2
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,849
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,849
15 yr Member
Default Take a look at these--

--just to give yourself a little background on the condition and its somewhat deceptive name:

Lupus anticoagulant - Wikipedia.

Frequently Asked Questions About Antiphospholipid Syndrome

I don't have a lot of time today, but the short answer is yes, there are numerous autoimmune conditions along the vascular anti-nuclear antibody spectrum that can result in many of the symptoms you are reporting.

Immune Neuropathies: Axonal
glenntaj is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dannibal (05-30-2021)
Reply

Tags
clots, hospital, lupus, tests, vein

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Possible Partial Cure For Autoimmune Disorders? richardbrock Autoimmune Diseases 4 07-09-2019 09:52 AM
Fluorescent Lights & Autoimmune Disorders 6thCranialNerve Myasthenia Gravis 2 02-20-2019 05:58 PM
Recurrent Pulmonary Emboli jonlyn General Health Conditions & Rare Disorders 4 01-03-2014 05:36 PM
Curcumin for autoimmune disorders? Quandry Myasthenia Gravis 7 02-11-2013 08:56 PM
Please Read My Post In The Autoimmune Disorders. lailavia Arthritis 0 06-20-2007 03:04 PM


All times are GMT -5. The time now is 04:04 PM.

Powered by vBulletin • Copyright ©2000 - 2023, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2023 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.