Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


advertisement
Reply
 
Thread Tools Display Modes
Old 06-03-2021, 11:44 PM #1
Dannibal's Avatar
Dannibal Dannibal is offline
Junior Member
 
Join Date: May 2021
Location: Pennsylvania, US
Posts: 11
Dannibal Dannibal is offline
Junior Member
Dannibal's Avatar
 
Join Date: May 2021
Location: Pennsylvania, US
Posts: 11
Default Aftermath of having PEs and DVTs

Back on 19 May, I was hospitalized with extensive blood clots in all lobes of my lungs and in my left leg. This is my second time with pulmonary emboli (the first was about 10 years ago or so). I was discharged from the hospital on 24 May.

I had my hematology follow-up this week. They want me to get another chest CT and another ultrasound of my legs (scheduled for 3 Aug). They also want me to get more blood tests done on 13 Aug, to retest for the lupus anticoagulant antibody (since I tested positive for it in the hospital). I was told that in all likelihood, I will probably test positive a second time, and if so, that will mean I have Antiphospholipid Syndrome.

And if that's the case... they will switch me from Xarelto to Coumadin.

I was on Coumadin the first time I had clots and I had to get my blood tested every two weeks. So...I'm not looking forward to that (especially since I'll be on Coumadin the rest of my life). And I'll have to be mindful of my vitamin K intake which, tbh, I'm not good at. A lot of foods high in vitamin K, I love. But not to where I eat them every single day. That will be the hard part for me, honestly.

Also, today I noticed some pain in both legs... just mild, like a small cramp. I am sure it is nothing (and I still have the filter in, even if I did develop more clots in my leg). But....I'd be lying if I said it doesn't mess with the brain. It's like... "oh, a small cramp, should I mention it to my doctor?" Especially since the only symptom of clots in my leg, that I had, was I felt like I had a mild pulled calf muscle; no redness; no swelling; no discoloration; no warmth; etc. But I also don't want to be the type of person that worries about every little twinge in their legs and just be a nuisance.

I'm sure the further my clots are in my past, the less paranoid I'll be about stuff like that.
Dannibal is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Atticus (06-03-2021)

advertisement
Reply

Tags
blood, clots, coumadin, legs, time

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Tips for the Emotional Aftermath? Batesmom Multiple Sclerosis 3 06-05-2013 06:45 PM
Prednisone Aftermath Southern Bell Myasthenia Gravis 4 01-22-2013 11:55 AM
Aftermath Jaime_S Creative Corner 1 02-28-2009 12:01 AM
The Aftermath of Suicide Alffe Survivors of Suicide 6 01-08-2009 07:24 AM


All times are GMT -5. The time now is 04:07 AM.

Powered by vBulletin • Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2021 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.