Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


advertisement
Reply
 
Thread Tools Display Modes
Old 04-12-2008, 06:46 PM #1
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default Reynaud's Syndrome

Does anyone have RS? I am sure that's a pretty silly question but I do have it along with MS and am wondering how many others here have RS along with other diseases or disorders.

I know there are two types, primary and secondary. I have primary but lately I seem to be having episodes more and more often. I know that stress can bring it on and so can the cold weather (it's been a little chilly here in Idaho ... )

I found this website along with a couple of others, but was hoping that maybe some of you had some experience with this...I know I don't have connective tissue disorder (scleroderma) and no thyroid problems, so I am just hoping that maybe the increased cold hands and feet is due to the unusual amount of stress I've been under lately

http://www.lef.org/protocols/heart_c...yndrome_01.htm
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote

advertisement
Old 04-13-2008, 12:39 AM #2
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default

I've not been diagnosed with RD, but I'm starting to think I may have it. In cool weather my fingers and toes are blanched pure white.

I'd actually had it in my mind to mention this to my local doctor when I go for my next visit.

Thanks for the link FG.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote
Old 04-13-2008, 06:08 AM #3
Alffe's Avatar
Alffe Alffe is offline
Young Senior Elder Member
 
Join Date: Aug 2006
Posts: 11,298
15 yr Member
Alffe Alffe is offline
Young Senior Elder Member
Alffe's Avatar
 
Join Date: Aug 2006
Posts: 11,298
15 yr Member
Default

I have Reynaud's also. Even picking up anything from the freezer sets it off.
One of my daughters has it in her toes. I find sucking really hard on the affected fingers as soon as it starts helps a lot! (course in the grocery store you look like a pervert)
__________________

.
Alffe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-13-2008)
Old 04-13-2008, 07:56 AM #4
Parkie Patty Parkie Patty is offline
Junior Member
 
Join Date: Apr 2008
Location: Richmond Twp. MI
Posts: 7
15 yr Member
Parkie Patty Parkie Patty is offline
Junior Member
 
Join Date: Apr 2008
Location: Richmond Twp. MI
Posts: 7
15 yr Member
Default

I too have Raynaud's. I've had it since 1983. Also have Parkinson's Disease diagnosed 1/2008. It's been bad this year...having attacks even in the house. I've tried battery operated heat gloves and socks with no luck. Have been buying those little hand warmers (I must have stock in them I buy so many) A doc I know takes the medication (can't remember the name) that treats high cholesterol and high blood pressure and gets great relief. Well, I have low BP so that wouldn't help me. Yes, stress brings it on too. It's a double doozy having frozen parkinson's hands.
Parkie Patty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-13-2008)
Old 04-13-2008, 12:25 PM #5
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

I carry those hand warmers around all the time, even the ones that go in your shoes. My feet are the worst b/c of the MS, my feet are numb all the time so I have to be really careful b/c I cannot tell if they are cold or not! I have to actually touch them...

We must have the market cornered on those hand warmers! I buy them by the case!
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
Old 04-17-2008, 12:15 AM #6
fanfaire's Avatar
fanfaire fanfaire is offline
Member
 
Join Date: Aug 2007
Location: Little house on the prairie
Posts: 179
15 yr Member
fanfaire fanfaire is offline
Member
fanfaire's Avatar
 
Join Date: Aug 2007
Location: Little house on the prairie
Posts: 179
15 yr Member
Default

I've got Raynaud's secondary to Sjogren's syndrome. It affects my hands, feet, nose and ears. Not a good time when the temperature is 20 below zero.

I have fingerless gloves that go up to my elbows to wear when I type. I wear high top house shoes over thick chenille socks. And I often wear a hoodie to keep my ears warm (hats make my head itch).

Mine was steadily getting worse but seems to have leveled off a bit since I went on immuno-suppressants. I haven't noticed any connection with stress but I have read it can affect some people that way.

fanfaire
__________________
Sjogren's, neuropathy, gastroparesis, diabetes, celiac, Raynaud's, hypothyroidism, fibromyalgia, chronic myofascial pain, periodic limb movement disorder
fanfaire is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-17-2008)
Old 06-26-2008, 06:35 PM #7
4everyoung's Avatar
4everyoung 4everyoung is offline
Junior Member
 
Join Date: Jan 2008
Posts: 9
15 yr Member
4everyoung 4everyoung is offline
Junior Member
4everyoung's Avatar
 
Join Date: Jan 2008
Posts: 9
15 yr Member
Default

yup I was dx with it in my 40's before any thoughts of MS
4everyoung is offline   Reply With QuoteReply With Quote
Old 06-26-2008, 07:07 PM #8
JustWeave's Avatar
JustWeave JustWeave is offline
Member
 
Join Date: Feb 2007
Location: Earth (I think)
Posts: 780
15 yr Member
JustWeave JustWeave is offline
Member
JustWeave's Avatar
 
Join Date: Feb 2007
Location: Earth (I think)
Posts: 780
15 yr Member
Default

I've had it for a few years now. The really weird thing about me is it effects my right side more than my left. www.raynauds.org was a help to me when I was first dxed.
__________________
Later, JustWeave
.

12/02- health world implodes, 11/05- Raynaud's (Brr!), 2/07- celiac, 3/07- gluten free diet

I will survive.
JustWeave is offline   Reply With QuoteReply With Quote
Old 07-01-2008, 05:31 PM #9
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by WeaveHerr View Post
I've had it for a few years now. The really weird thing about me is it effects my right side more than my left. www.raynauds.org was a help to me when I was first dxed.
Me too!!! Doc said it was b/c I am right-handed.

Thanks for the link!
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
Old 07-01-2008, 10:02 PM #10
JustWeave's Avatar
JustWeave JustWeave is offline
Member
 
Join Date: Feb 2007
Location: Earth (I think)
Posts: 780
15 yr Member
JustWeave JustWeave is offline
Member
JustWeave's Avatar
 
Join Date: Feb 2007
Location: Earth (I think)
Posts: 780
15 yr Member
Default

Quote:
Originally Posted by Av8rgirl View Post
Me too!!! Doc said it was b/c I am right-handed.

Thanks for the link!
My docs never gave me a reason for the extra sensitive side. I thought I was just plain weird.
__________________
Later, JustWeave
.

12/02- health world implodes, 11/05- Raynaud's (Brr!), 2/07- celiac, 3/07- gluten free diet

I will survive.
JustWeave is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Stiff-Person-Syndrome/Stiff-Man-Syndrome? Any info? sharry50 Autoimmune Diseases 4 04-21-2012 01:10 AM
Research on Reynaud's and Scleroderma tshadow Thoracic Outlet Syndrome 3 12-03-2007 04:50 AM
TOS 101 - It's a SYNDROME beth Thoracic Outlet Syndrome 11 07-28-2007 03:28 PM
Statins and ALS-like syndrome olsen ALS 4 06-11-2007 12:26 AM
Locked In Syndrome fayeforcure ALS 3 03-05-2007 11:07 AM


All times are GMT -5. The time now is 12:09 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.