Mrs.D.

Thanks so much for the link.

Alan has SUCH sensitive skin, I don't think he'd chance this. His skin gets all red and inflamed.

We've been using the Vitamin E, and the A D & E ointment.

This morning, I could not believe it. The lesion on the left side of the right leg (the one where he wears the CROW boot), well it's almost gone. Can't believe this. One elbow and higher up on that arm, well, it's almost gone. The other elbow still has a patch, but it's not inflamed.

The area between his eyebrows is all gone. One ear is much better, and the other ear is still red, but no patches.

This is the most baffling thing I have ever seen.

Obviously the Vitamin E is a good thing.

I would like to mention one change we did in his daily routine.

HE STOPPED USING ALL KINDS OF REGULAR DEODERANT AND ANTI-PERSPIRANTS.

He had been using BRUT spray. God knows what's in the stuff.

I had purchased some roll on crystal thing in CVS. It's called NATURALLY FRESH DEODERANT CRYSTAL. Underneath it says 'NO HARMFUL ALUMINUM"

It also says Natural Phytosphingosine, non staining and fragrance free.

He's been using this for about 4 days now. I won't buy anything with a fragrance or aluminum.

We shall see.

I do appreciate all your knowledge, believe me.

Thanks much.
Melody

I too am taking IVIG and have had the same problem of a psoriasis flareup. I am going to talk to the neurologist about this, but assume that there is a connection. I will le tyou know what I find out.
Elaine

you can try using desoximetasone USP 0.25% cream. It is very expensive a 60g tube is around $150 and prescription only. You can also try petroleu jelly (vaseline) from any drugstore for a few$ no prescription needed. The dermatologist in grave cases put patient in a ultraviolet chamber. Maybe staying in the sun will help.
Good luck![ U][/U]

Hi. Thank you very much for replying.

We don't have the money for the $150.00 cream. We've tried petroleum jelly and every other kind of cream they make. My husband is no longer on IVIG (since Christmas) and he went back to using Clobetasol. You see, he's very lazy about using the stuff. He couldn't care less.

And he is so fair he NEVER goes in the sun. That's why he takes Vitamin D.

Oh well.
We shall see.

Life hands you lemons and we make lemonade.

lol

Melody

Make the man grow up! Have a hissy fit! Quit cooking for him and doing for him! He HAS to, no MUST take control of HIS problem.
OR Simply WALLOW in it.
Melody, he's grown up! Either he is gonna do that which he must to get better or not/wallow in misery. HIS CHOICE. Not yours. And you are too good and strong to be an enabler in this. Don't make HIM your crutch.
Thus, IS it HIS problem or YOURS?
I am sorry to seem to harsh, but Alan truly needs help of many sorts...and your ministering to/for him isn't gonna get HIM out of his self-imposed cage.
I know, because I've been there. And I wasn't 'fun' to be around either!
Just think on this and then think again! Don't be mad at me please? I've been mad about thinking many things myself about the pain, etc. and you can get on one of those squirrell wheels and go round and round and round. To no good. My heart is with you, good person and: 's - j

I have used Taclonex for years (it is not new, just one of the newest and comes in ointment, cream, etc versions). I find it works well but is greasy feeling. I have a rather large selection of a variety of ointents, shampoos, foams and creams from my Dermatologist (most, but not all are Rx) and many come in a generic form.

I also have a medicated occlusive tape (Cordran tape) that works extremely well. It leaves pink/red skin but no scales. If I use it on a new lesion it seems to knock it away for good. It is a perscription item.

The key to psoriasis treatment is that most products (Rx or OTC) stop working after a bit and you have to keep switching medications to keep it in check. Winter vs. Summer also causes differences in how active it looks as it responds to sunlight.

The injectibile and oral medications work by trying to dampen the inflammatory response (ie. T cells, B cells, etc) and many find they work extremely well or put them in remission for months at a time. Regular physician monitoring is essential. They are generally reserved for severe and/or resistant cases.

Some people get good results from moisturizing lotions/oils/creams and others must go the Rx route. I wish you luck finding a solution but realize they have no "cure" for psoriais yet, only treatment options.

BTW_ he should be seeing a dermatologist if he is not already under their care (not a primary care physician) as they are much more experienced in this organ (the skin is an organ system of the body)

Good Luck!

The last time my husband went to see a dermatologist, she was covered in thousands of cherry angiomas. Never saw such a thing on anyone in all my life. My husband turned to me as we were leaving her office and he said

"And you want me to listen to what SHE has to say?" "She can't even get rid of her Cherry marks".

lol

I never forgot that. We looked up cherry marks and got all the info. Alan has a few of them. They have become less apparent as he got older.

But he won't go to a dermatologist any more. Especially as there is no cure for psoriasis, just treatment, as you mentioned. He is however, using the cream (clobetazole), and if I leave a little jar of coco butter, he'll put that behind his ears.

So he is doing SOMETHING, (even if it's a little).

lol
Melody