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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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10-21-2010, 11:44 AM | #1 | |||
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Wisest Elder Ever
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Welcome to NeuroTalk.
I'd like to offer up two early suggestions: 1) you say she had B testing? Was this B12? If the doctor said "normal" to you, I'd suggest you get the actual test results. U.S. lab ranges go down very low to the 200's...and this is no longer considered "normal" with the new medical information out there. If your daughter is down there, she could do with B12 treatment. 2) Low potassium could be a culprit too. The RDA for potassium has just been raised to 4.5 grams a day. Many people do not get this thru their diet. And weakness is one sign. There are also genetic conditions, that affect potassium movement into the muscle. One is called familial periodic paralysis. It is hard to catch with testing because the blood levels of potassium tend to change rapidly after a weakness attack. This website will give potassium content of many common foods: www.nutritiondata.com If you check her diet, carefully, you can see how much she gets daily. And also, make sure she is not "purging"...young girls do this to lose weight, and keep it a secret. When this is done, with laxatives, potassium is lost in the loose stools and the body gets low that way. We have an MG forum, and they are very helpful over there...so I suggest you visit them when you get a chance. http://neurotalk.psychcentral.com/forum77.html
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10-21-2010, 07:06 PM | #2 | ||
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Magnate
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And more? Did she have a bout of flu in the past year? Do go thru your memory bank and go back and ask docs for copies of blood work from that past! Then let docs do blood work and some MRI's Cat's and Maybe even PET scans if you can? These tests combined can help you all get your daughter diagnosed.
Thing about MS? it 'shows lesions' in the brain where 'demeyelination' can and does occur. For other 'auto immune diseases'? It does not, because it's occurring at the 'molecular' level, at the extremity nerve endings. They don't show up on MRI's, ETC... As they are too small, then nerve conduction studies are called for: they measure the speed/rate nerve 'action/reaction' occurs from the extremeties to that brain. The 'nerve conduction and velocity studies' are key to diagnosis. Don't panic yet.. IF it's a 'demeyelination' issue that isn't MS [which occurs in the brain] but one that occurs in what's called the 'peripheral' nerve system [anything outside the brain] There are treatements and protocols for testing and getting treatments! So, THERE IS HOPE! Downside is how's your insurance? Makes a lot of difference as to what you mite have your problems treated with for both the short and long term. I went to BIG GUNS Docs at teaching hospitals to get my diagnosis. Other docs tend to be more conservative and treat some issues too conservatively... That is all up to YOU and your daughter, and what tests you get, ...then what more tests you get! BE SURE TO ASK FOR RESULTS! THE REPORTS May seem like 'greek' at first? But, because you NEED to learn the lingo...it'll come. And BE useful. My heart goes out to you and your daughter! The whole thing gets really, 'OLD' after a while? But then you gotta keep up to date for the long run! I've had AN autoimmune- neuropathy for over 7 years now. I still lead a life, and can get around, tho with awkwardness [for a lack of a better way of putting it] and I'm still fighting to the last! Feel free to ask me about it, and PM me when you can... I realize this is something totally mind-freaking and body crumpling SCARY! We get THRU and get BY! 's and hope! And don't be shy! - j |
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10-24-2010, 07:33 PM | #3 | ||
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Member
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I'm so very sorry for what your daughter is going through.
So far, the replies are right on the money. She needs to be seen by GOOD docs at the best medical center/teaching facility to which you can get her. She needs to have a large workup until they come up with an answer. If you can get to one of those places, be sure to ask for the best docs available (neurology), ask for a nurse in that department and stress how very serious her condition is or have her primary care doc call and request an urgent appointment. Wishing you the best. Good luck and best wishes, Sheltiemom |
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11-15-2010, 03:06 AM | #4 | |||
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Junior Member
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Quote:
Do you know if your B6 Levels were checked?? |
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