I have been recently diagnosed with Sjogren’s Syndrome. I accidently found this web site and I’m in hopes to find someone that can help me make sense of all of this I never discuss my situation with anyone, I feel like they all think that I’m crazy. I’m so tired all the time I have become very angry. I have had people tell me that it’s all in my head and that doctors are just telling me that I have Sjogren’s so that I will shut up. They claim that it is not a real disease. I have attacks off and on (about every three months) they would last about a week and a half. They passed me from doctor to doctor and my tests all came back fine. I checked into the ER on three different occasions and finally after my husband stood there yelling that something was wrong they began to run more tests. I have not even had a cold in 20 years. They finally found that my inflammation levels in my body were extremely high. All that I could tell them was “ I hurt” first I would say its over here (maybe point to my right side) then I would say it was over here (point to my left side) I had no idea that it was inflammation. The last episode lasted for approximately two and a half months, Only my family members knew, I would continue to try and make it all day at work, My eyes, nose and mouth were very dry but I blamed that on allergys, My vaginal area became so dry that it hurt for me to walk. I had Brain Fog which at the time I had never heard of such a thing. It scared me to death and the doctor that I was seeing looked at me like I was crazy when I would try to explain. Of course at the time I know now that I was not making much sence, when I have these attacks I find it very difficult to speak property. Short term memory loss nausea, extreme pain, lower back and sciatic nerve problems. I am now seeing a Rheumatologist and he has put me on Plaquinil and prednisone. They say it will be a few months before I notice a difference with the Plaquinil. Is anyone taking Plaquinil or know anything about it. I’m not sick at the moment but I find myself unable to work the way I’m use to. Absolutely no energy and if I do get a little energy and try to even clean my house the way I use to I usually end up paying for it for a few days. Is there anyone out there that can give me some insight on Sjogren’s? I’m not very good with computers so I’m hoping I will be able to figure out how this web site works. I have tried researching this on line and it really only talks about dry eyes and mouth. In my case there are so many other issues that I’m wondering if I have been diagnosed properly. Thank you to anyone that