[Jody]

Hi there

I just found your site last night. I have SLE, Fibromyalgia and Hypothyroidism. At the moment I am doing pretty okay. Nothing too serious or unmanageable.

Im looking forward to getting to know all of you

Bye for now
Jody

[Chemar]

Ji Jody and welcome to NeuroTalk!

[Curious]

to NeuroTalk Jody.

[loisba]

Hi, Jody, and welcome to NT! I've got hypothyroidism myself now, after having had Grave's Disease as a child. I also post on the Myasthenia Gravis forum, and the gluten sensitivity/Celiac forum. I've had the MG since the mid-1970's, but the gluten sensitivity is my latest 'acquisition'. (Discovered it about a month ago.) I'll look forward to your posts.
Hugs,

[Jody]

Hi again

Thank you very much for the welcomes I have been diagnosed with SLE, Fibro and Hypothyroidism for approximately two years. I am currently on a number of meds including Plaquenil and Prednisone and something for the thyroid and also for acid reflux. Oh yes, I almost forgot, I am also on a medication for high BP. Its all go isnt it?...

I have had chronic lung pain for about four years now every time I breathe and my rheumy thought that putting me on low dose pred would help this but it hasnt . I am on pred now for over a year. I have an appointment shortly and I am going to talk to the rheumy about coming off the pred as it doesnt appear to be making any difference. Anyone else experience the lung pain issue and if so did anything make it do away?

Thanks again
Jody

[JoaD]

Originally Posted by Jody

Hi again
I have had chronic lung pain for about four years now every time I breathe and my rheumy thought that putting me on low dose pred would help this but it hasnt . I am on pred now for over a year. I have an appointment shortly and I am going to talk to the rheumy about coming off the pred as it doesnt appear to be making any difference. Anyone else experience the lung pain issue and if so did anything make it do away?

Thanks again
Jody

Have you had a CT scan of your lungs? I have SLE,APS and myositis. I have on and off shortness of breath (SOB) as well as side pain ( never associated with lung pain) for more than a few years. I have had pulmonary embolisms in the past and just thought this was the after effect. In the past 6/8 months the SOB increased and it began to hurt to breath during the episodes. I attributed it the extra weight and being more inactive but did mention it to my rheumy. I also developed a dry cough with the episodes. A CT scan showed interstitial lung disease.
http://www.njc.org/disease-info/dise...out/index.aspx
Joanne

[Jody]

Hi Joanne

No I havent had a CT scan done. I did have a chest xray over a year ago now and that was alright apparently. I will definitely mention it to my rheumy on my next visit. Its one of those things that has gone on so long I have learned to live with it and havent bothered my rheumy with it for a long time so I guess its time to raise it again. I will let you know how I got on. Thanks again
Jody