Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


advertisement
Reply
 
Thread Tools Display Modes
Old 01-25-2009, 07:23 AM #1
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default Sicca Syndrome/Sjogrens Syndrome

So, is there a difference? When my sleep doc told me I may have Sicca Syndrome, I had never heard of it. When I researched it online, not much is said about Sicca, and often refers back to Sjogrens. I found this:

http://palm.skynetmd.com/skymain_sea...lm&li=palm&v=2

Quote:
If the person has symptoms suggestive of Sjogren's, such as excessive dryness of the eyes and mouth, thirst, gritty sensation in the eyes, red injected eyes, mouth sores, abnormal taste, cavities, recurrent nosebleeds, cough, hoarseness, swelling in front of the ears (parotid enlargement), arthritis like symptoms.
I have a mouth full of fillings, and now, broken teeth. I have been diagnosed with dry eyes, although my boss, also my optometrist, says it's hormonal or allergies, so I use Refresh or Systane Ultra every day. The gritty sensation in my eyes is a daily occurance. The dry throat started last year, and now that I have a CPAP machine, I am finding the dryness much worse, with my tongue stuck to the roof of my mouth every morning. Years ago, my voice changed to the deep, raspy voice I have now. I spend most of one summer with no voice at all. Dry nasal passages is a daily occurance too.

I also know there are different ways of testing for Sicca/Sjogrens, some better than others. What is the best way?

Thank you.
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote

advertisement
Old 04-01-2010, 05:02 AM #2
Sleeeepy's Avatar
Sleeeepy Sleeeepy is offline
Junior Member
 
Join Date: Mar 2010
Location: Pennsylvania
Posts: 18
10 yr Member
Sleeeepy Sleeeepy is offline
Junior Member
Sleeeepy's Avatar
 
Join Date: Mar 2010
Location: Pennsylvania
Posts: 18
10 yr Member
Note

Hello, they call it sicca syndrome when there is no diagnosis of Sjogrens or any other disease causing the dryness. There are blood tests that can confirm Sjogrens , but many people are negative on those tests yet exhibit the symptoms. Lip biopsy and schirmer eye test can also be used to diagnose Sjogrens. Hope this helps some. Mary
Sleeeepy is offline   Reply With QuoteReply With Quote
Old 04-01-2010, 05:54 AM #3
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default

Welcome to NeuroTalk Sleeeepy.

I'm not sure if you noticed that the post you replied to above was made back on 01-25-2009. That isn't a problem but wasn't sure if you were aware or not.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote
Old 04-01-2010, 05:58 AM #4
Sleeeepy's Avatar
Sleeeepy Sleeeepy is offline
Junior Member
 
Join Date: Mar 2010
Location: Pennsylvania
Posts: 18
10 yr Member
Sleeeepy Sleeeepy is offline
Junior Member
Sleeeepy's Avatar
 
Join Date: Mar 2010
Location: Pennsylvania
Posts: 18
10 yr Member
Red face Thanks

Im going to blame my not noticing how old this post was on my brain fog Thanks for telling me because I am finding it difficult to navigate around this site, but give me a little while and I will be flying through here..LOL Thanks again ....Mary
Sleeeepy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Koala77 (04-01-2010)
Old 04-01-2010, 06:53 AM #5
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default

Thanks for responding anyways...I'm still dealing with the dryness, and my neuro said I was negative for Sicca. My eyes are the worst, although, I do have sleep apnea and my CPAP dries my mouth out so bad I can't even spit. Yes, it does have a humidifier on it, and I fill it everyday with distilled water. when it's rainy, my eyes do fairly well, the minute it starts to get nice, I have a sand pile in them, burning, scratchy...goes on and on. I work for an optometrist who tells me it's hormonal..which I do not believe. I know it's auto-immune, I already have other auto-immune issues.

Thanks again,
Deb
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
What is Tourette Syndrome? Chemar Tourette Syndrome 8 04-09-2019 01:41 PM
Stiff-Person-Syndrome/Stiff-Man-Syndrome? Any info? sharry50 Autoimmune Diseases 4 04-21-2012 01:10 AM
TOS 101 - It's a SYNDROME beth Thoracic Outlet Syndrome 11 07-28-2007 03:28 PM
Restless Less Syndrome Isis Bipolar Disorder 2 10-27-2006 05:03 PM


All times are GMT -5. The time now is 06:19 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.