FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
Reply |
|
Thread Tools | Display Modes |
02-21-2009, 11:20 PM | #1 | |||
|
||||
Junior Member
|
i am seeking members who not only have autoimmune issues (as i do) but other problems such as neuropathy. I believe these issues are related and think we need to join together to get the attention of the medical community. I am not ready to accept a diagnosis of dealing with pain. I have my own autoimmune issues as well as neuropathy and believe there is a connection.
Please see my posting under peripheral neuropathy. i am bound and determined to pursue this.. would love some help. |
|||
Reply With Quote |
03-23-2009, 02:20 AM | #2 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
03-25-2009, 05:19 PM | #3 | ||
|
|||
Junior Member
|
Hi, I have peripheral polyneuropathy and have been told I most probably have Sjogren's. None of my tests for Sjogren's as of yet have been positive but I do have severely dry eyes/nose/mouth and quite a few other symptoms (Raynauds etc). I am currently awaiting my second lip biopsy which hopefully will confirm the Sjogren's. I have been told (and have read) that polyneuropathy can be a side effect of a number of autoimmune diseases, including Sjogren's. I believe the medical community is quite aware of these linkages but that there is little being done to figure out cause, treatment etc. I also find it confusing how I can be told there is no treatment for Sjogren's but I could try prednisone for my neuropathy (which is caused by Sjogren's....). Anyway, good luck, let us know how it goes.
Quote:
|
||
Reply With Quote |
03-28-2009, 04:16 PM | #4 | ||
|
|||
Junior Member
|
I was first diagnosed with Multifocal Motor Neuropathy which started with painful cramping in my right hand and fingers. I have now gone to a diagnosis of CIDP because of pain and severe sensitivity in my right hand plus weakness has now gone over to my left leg and foot.
I am told this is a rare disease so it helps to find people and exchange notes. I am on IVIG treatments which so far have kept things at bay. |
||
Reply With Quote |
05-06-2009, 12:18 PM | #5 | |||
|
||||
Member
|
I have just been diagnosed with Neuropathy & myopathy due to a connective tissue disease, It is an overlap with my Myasthenia gravis. Back to the Reumy for a look on worsening symptoms !
|
|||
Reply With Quote |
05-07-2009, 06:25 AM | #6 | ||
|
|||
Junior Member
|
My neuropathy is related to autoimmune diseases. It's genetic, not diabetic or alcoholic induced. I'm on 5mg of prednisone a day to keep it stable.
|
||
Reply With Quote |
07-13-2009, 06:57 PM | #7 | ||
|
|||
Junior Member
|
Hi - can you tell me how the prednisone is going? One of my neurologists recommended it (the other advised against it) - so far I haven't taken it for fear of side effects (glaucoma, sleeplessness, irritability, weight gain etc). I would love to hear whether all these concerns are valid (knowing that everyone reacts differently)
thanks |
||
Reply With Quote |
07-17-2009, 03:23 PM | #8 | |||
|
||||
Member
|
I have Crohn's, eczema, arthritis, episcleritis, and peripheral neuropathy. I avoid prednisone like the plague, as when I was on it initially for severe ulcerative colitis I became extremelydepressed -- no, despondent -- and suffered many of the side effects immediately (my skin thinned and aged 2 decades practically overnight).
__________________
We live in a rainbow of chaos. ~Paul Cezanne . |
|||
Reply With Quote |
07-19-2009, 10:27 AM | #9 | ||
|
|||
Junior Member
|
Quote:
immune (Collagenous Colitis) plus allergies of various types. I am quite sure that they are all connected. I have had varied success with prednisone, doximethazone and Solumedrol, each time different, some bad, others very helpful. It can't hurt to try, but don't start on or right before a weekend. You may just need to be in touch with Dr's office! Good luck. |
||
Reply With Quote |
08-18-2009, 06:09 PM | #10 | |||
|
||||
Member
|
They tell me my PN is related to the fact I have some kind of AutoImmune Disease, so I am with you.
__________________
~ He gave her twelve roses...eleven real and one fake....and he told her: "I will love you until the last one withers and dies."~ . |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Autoimmune Hepatitis | Autoimmune Diseases | |||
Newbie w/Autoimmune SFN | Peripheral Neuropathy | |||
New to AutoImmune | Autoimmune Diseases | |||
new autoimmune medication | Autoimmune Diseases | |||
yet another autoimmune disease | Multiple Sclerosis |