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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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Junior Member
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i am seeking members who not only have autoimmune issues (as i do) but other problems such as neuropathy. I believe these issues are related and think we need to join together to get the attention of the medical community. I am not ready to accept a diagnosis of dealing with pain. I have my own autoimmune issues as well as neuropathy and believe there is a connection.
Please see my posting under peripheral neuropathy. i am bound and determined to pursue this.. would love some help. |
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New Member
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#3 | ||
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Junior Member
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Hi, I have peripheral polyneuropathy and have been told I most probably have Sjogren's. None of my tests for Sjogren's as of yet have been positive but I do have severely dry eyes/nose/mouth and quite a few other symptoms (Raynauds etc). I am currently awaiting my second lip biopsy which hopefully will confirm the Sjogren's. I have been told (and have read) that polyneuropathy can be a side effect of a number of autoimmune diseases, including Sjogren's. I believe the medical community is quite aware of these linkages but that there is little being done to figure out cause, treatment etc. I also find it confusing how I can be told there is no treatment for Sjogren's but I could try prednisone for my neuropathy (which is caused by Sjogren's....). Anyway, good luck, let us know how it goes.
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#4 | ||
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Junior Member
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I was first diagnosed with Multifocal Motor Neuropathy which started with painful cramping in my right hand and fingers. I have now gone to a diagnosis of CIDP because of pain and severe sensitivity in my right hand plus weakness has now gone over to my left leg and foot.
I am told this is a rare disease so it helps to find people and exchange notes. I am on IVIG treatments which so far have kept things at bay. |
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#5 | |||
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Member
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I have just been diagnosed with Neuropathy & myopathy due to a connective tissue disease, It is an overlap with my Myasthenia gravis. Back to the Reumy for a look on worsening symptoms !
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#6 | ||
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Junior Member
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My neuropathy is related to autoimmune diseases. It's genetic, not diabetic or alcoholic induced. I'm on 5mg of prednisone a day to keep it stable.
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#7 | ||
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Junior Member
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Hi - can you tell me how the prednisone is going? One of my neurologists recommended it (the other advised against it) - so far I haven't taken it for fear of side effects (glaucoma, sleeplessness, irritability, weight gain etc). I would love to hear whether all these concerns are valid (knowing that everyone reacts differently)
thanks |
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#8 | |||
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Member
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I have Crohn's, eczema, arthritis, episcleritis, and peripheral neuropathy. I avoid prednisone like the plague, as when I was on it initially for severe ulcerative colitis I became extremelydepressed -- no, despondent -- and suffered many of the side effects immediately (my skin thinned and aged 2 decades practically overnight).
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We live in a rainbow of chaos. ~Paul Cezanne . |
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#9 | ||
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Junior Member
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immune (Collagenous Colitis) plus allergies of various types. I am quite sure that they are all connected. I have had varied success with prednisone, doximethazone and Solumedrol, each time different, some bad, others very helpful. It can't hurt to try, but don't start on or right before a weekend. You may just need to be in touch with Dr's office! Good luck. |
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#10 | |||
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Member
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They tell me my PN is related to the fact I have some kind of AutoImmune Disease, so I am with you.
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~ He gave her twelve roses...eleven real and one fake....and he told her: "I will love you until the last one withers and dies."~ . |
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Thread | Forum | |||
Autoimmune Hepatitis | Autoimmune Diseases | |||
Newbie w/Autoimmune SFN | Peripheral Neuropathy | |||
New to AutoImmune | Autoimmune Diseases | |||
new autoimmune medication | Autoimmune Diseases | |||
yet another autoimmune disease | Multiple Sclerosis |