what about the bleeding ovary?

I am so glad things don't sound bad....hope you can relax more now...you have really had it terribly rough
bobby

Thanks :grouphug:

Bizi, the gyn said that bleeding ovarian cysts are pretty common and usually don't present a major problem.

The trouble at the gyn's office continues...

They are affiliated with hospital x, but my insurance makes me have everything done at hospital y. I've never had a problem getting a doctor to write an order for hospital y....

I let the girl at the gyn's office know I have to go to hospital y for the ultrasound. She said that the gyn's office couldn't book a test there. She left a written order for me to pick up at the office, so I could schedule the appointment myself....
I picked the order up yesterday, and called the hopsital- they told me only the doctor's office could book the test, and they CAN do it....

So, I had to call the gyn's office AGAIN to get the ultrasound booked. The RN I spoke to was floored when I told her what happened, "of course we can book appointments with (hospital y)!"
She took care of it, and I go for the ultrasound tomorrow.
-------

I found out last week that my husband doesn't have medical insurance. I left the plan when I became eligible for medicare, but didn't make any changes to his coverage. We're both supposed to have dental, but questioned that because I couldn't see them deducting any of that from his paychecks.

I called the benefits administrator (she's in OH, I'm in MA) yesterday. She said she'd look into it and call me back.
She called this morning. I didn't make any mistakes when I took myself off the policy. Someone made a mistake. She's going to reinstate his coverage.
The funny thing is, we both DO have dental. But somebody made a mistake (again), and the company has NEVER deducted anything from his paycheck. Fortunately, they won't charge us retroactively because it was an administrative error.
-----

Obviously, I made it to Boston and back solo in 1 piece! I did get lost a few times, even though I have GPS.

The appointment with the NP at the MS Ctr. went well. I have been feeling weaker, more tired and run down lately, but she said it's hard to tell if that's MS or not because of the GI and GYN stuff.
I have been having breakthrough neuro pain in my legs at night and want to increase the night time dose of neurontin- still waiting to hear back on that, cuz she has to ask the neuro.
I asked her about the black hole on my MRI they didn't tell me about. She said most people only want to know about new and enhancing (active lesions that take up the IV contrast), but she understood I want to know it all and expect to have my results discussed with me. I kinda gave her the 3rd degree :D
I have an appointment with the neurologist in July.
------

So, just a bunch of BS to deal with.
No rest for the wicked I guess.

Well, I am glad that the gyn was finally able to schedule your appointment...that would have infuriated me....ugh!
Congratulations on making the trip to boston...yeah!!!!!
Thanks for the update and I think you are amazing keeping up with all of this.
((((HUGS))))
bizi

you are amazing and so bright...and so very brave!!
bobby

Thank you, ladies! :grouphug:

I had the ultrasound. The TV ("innie") part was pretty painful though. The tech said it was pressure from the cysts. She was in there for a while. Oh well, it's over with.
With that gyn's office, God only knows when I'll get the results.

When the gastro said I had a 4cm cyst, I was puzzled because I thought the ovaries were pretty teeny. I asked the tech about it, and she said that an ovary is about the size of an almond, and cysts usually hang off. I was picturing it inside.... You find out something new everyday.

the ovary is pretty small and that is a significant cyst.
bizi

I thought so too, but according to the gyn it's not very big. I read that they can get as big as 8 cm!

Kay

I remember when I had the cyst. It was a 2cm for over 2 years. They
did a ultrasound every 6 months. And I remember that my primary(original
one) told me that if it grew she would send me to a gyn. Or if it was ever
sore or hurting. It never seemed to change, except it did start hurting.

I had a new primary, that sent me to a gyn, because it bothered me, two
and 1//2 years later. And it was decided to take it out. The Gyn, said
that when they start hurting leaving them in isn't good.

Donna:grouphug:

(Turned out mine was really 4 cm instead of 2cm, the gyn was surprised.)

Dear Kay,
Yes, thanks for teaching us something!

WOW. That is huge. You managed to get med and dental insurance straightened out. That's amazing.

Have a good week.

M.

Hi Mari,
Thanks for the kudos! I put off straightening some crap (like the insurance problem) out. Fortunately, it turned out to be no big deal this time.

Hi Donna,
I wish I knew how much of my pain and discomfort is from the cysts, but they're so close to the GI tract I have no way of knowing.

I haven't heard anything back about the ultrasound I had on Thursday. I'll give them a week.... and I'll call this Thursday to check in (although I want to know NOW).
Even if the results are the same and the GYN doesn't think the cysts are a problem right now, they should contact me to let me know when to have a follow up ultrasound... but that office sucks!
---

I'm getting pretty anxious about the colonoscopy on Wednesday!!!
My mind is linking all the recent GYN and GI business together, and I'm worried I have a tumor....
I know the GYN and GI stuff probably isn't related, and it's very unlikely I have a tumor....
But I can't help worrying.
And the other worry is they won't find anything.

Not excited about the clear liquid diet, but I'll be a good girl and do it. After tonight, nothing solid, red, orange, or purple until after the test.
---

I see my pdoc tomorrow. I'll bounce some of my worries off of her, and ask her if she can recommend someone else for therapy. I'm sure she'll want a lithium level- maybe I can have it done at the hospital before the colonoscopy...?

Dear Kay,
I had to check my calendar after reading that. Tonight is Monday and the test is Wed. I was surprised that one needs to start the prep for that test this early. I guess you are starting Tuesday morning and the test will be Wednesday morning. Did you have someone to go with you?

It's normal to worry. I hope you can distract yourself and find ways to be calm while you prep for the test, do the test, wait for results. Sometimes, you can get them to tell you right after the test. Most likely you have to wait a day or so I'm guessing.

Good luck distracting yourself.
M.

Hang in there Kay! We're here for you! It's definitely normal to worry when having tests that to doctors are routine, but to us are monumental. You will get through it! I hope they find nothing. I know it's hard not to worry but you CAN do this! :grouphug:

Thanks Mari :hug:

Yeah, the clear liquids start first thing Tuesday... I drink the prep (32 oz of powerade + a TON of mirilax) at 5pm. No meds and nothing to eat or drink Wednesday, same prep at 5am.
I'm worried that all the prep will make the bleeding start again.

Amazingly, my father says he'll pick me up and drive me to the hospital the morning of the test. He won't stay, and I don't need him to.
They'll call my husband to let him know I'm ready, and he'll come pick me up after.

The letter the office sent me says the gastro will explain the findings after the test, but I won't hang my hat on that. I guess if they remove polyps or take other samples, it takes time for the pathology reports to come back.

My mantra is: Everything will be okay, everything will be okay...

Thanks Pam :hug:

Kay,
Sometimes the nurse or doc runs in quickly and mumbles something about the findings when the patient is still groggy.
If you miss what they tell you on Wed, I guess you can always call the office.
M.

good luck with the whole prep process....surprised they are only using miralax, glad for you that it has no taste!
and that gatorade has different flavors.
keeping fingers crossed that you get some relief aafter all of this.
bizi

I took the 1st bottle of prep at 5pm, but only went to the BR once at 2:30am. Took the 2nd bottle at 6am, and thankfully cleared everything by test time.

The RN took a wrong turn with the IV- hand really hurts, already black.
When the gastro came in, he said they were giving me the wrong type of sedation... was supposed to have more because some of the meds I'm on would've made it harder to get me into "twilight sleep."
He was able to get anesthesia in and give me the good stuff.

He had trouble getting the scope in (probably d/t big internal hemorhoid)- glad I had the good stuff...
But he didn't see anything else abnormal. He took some random biopsies to test for "microscopic colitis" (haven't looked that up yet). I see him or the NP in the office in 1-2 weeks. Pathology reports should be about 2 weeks.

I'm relieved it's over, and there was no tumor :)
Just tired, gassy, and sore in the ****!

great report!!!! glad to have that over I am sure! hope your hinnie feels better by tomorrow.
bizi

Dear Kay,
You did well. I'm glad it's over now
M.

thank goodness it is over....you did great. so glad things were caught in advance re sedation.
bobby

Thanks :grouphug:

I'm glad it's over, too!!!
I'm back to normal now... just tired, sore hand... no big whoop.

Called the gyn for ultrasound results, waiting for call back.
Called MS NP re: neurontin increase she promised to get back to me on (on the 5th), waiting for call back.
------

Forgot to tell you guys, I saw the pdoc on Tuesday. She had a lot of questions about MS, disability benefits, etc. for an unidentified pt. She has already asked me many questions before. It took up almost the whole appointment (over an hour) this time... only about 10 minutes actually discussing me and my meds.

I was very drained and upset by the appointment. I don't enjoy indiscriminately revisiting my early dx or fight for disability, or educating everyone who has/has a pt. who has MS. I have enough going on in my own life!

Not everyone with MS is disabled according to SSA standards- most aren't. This pt. has challenges, but is still working full time, so is NOT eligible for SSDI at this point, and I told her this- her patient should speak to her neurologist and get the advice of a lawyer. She still thinks this pt. should get SSDI.

Pdoc was trying to walk me through a print out of outdated (2003) info about MS. I told her she wasn't showing me anything I didn't already know, yet she continued "explaining" this info to me. I told her that she needed to consult the more current info that is available- as an NP, she should already know that. I should have reminded her that she is not a neurologist.

Eventually I told her that I didn't want to talk about someone else's MS anymore (I had already been more than patient).... everyone's MS is different and I have my own problems. I told her that her patient needs to be proactive in her own care, advocate for herself, and consult her neurologist. She understood, apologized.

I feel for her pt., but going through all of that is not my responsibility- And I don't like the blurring of boundaries....

Upset that she is talking to me about another pt. and divulging why tdoc has been out (fall down the stairs... badly broken ankle). Pdoc actually told me that this pt. was also bipolar and had a previous s/s attempt! This is not professional, and makes me wonder what she tells her unidentified patient about me. I'm also uncomfortable that she is advising this pt. on points that the patient should discuss with her neurologist- not a MH NP.

The good news is she is okay with me flying solo until my regular tdoc returns.

So relieved they didn't see any tumors! That's awesome Kay! I am so glad you managed to geth through it well. You are right to feel the way you do about the pdoc situation. That would disturb me too. :( I don't know why they do that to us, I have had tdocs do that to me too, on all counts, asking about SSDI and my disability (the amputation and use of a chair) and it always dredges up a mess for me to cope with on my way home and the following days. Hang in there, I hope it passes quickly, I know pdoc was just wanting to help the other pt, but it at the cost of YOUR peace of mind and time with pdoc, that's not too cool. :( Hope you feel back to normal soon! :D

Kay

Hmmm, I would send the company she works for a bill for the hour
she grilled you. This is something you at least shouldn't be charged
for. Or your insurance.

Dnna:grouphug:

Thanks Donna :hug:
I would send that bill, but I don't want to get her into trouble for divulging patient info- a possible HIPPA violation. I think I will warn her about that....

Pam,
Thank you for understanding how it feels when they dredge up all that crap :hug:... becoming disabled, the losses you suffer because of it, and fighting for disability is traumatic enough...

During that appointment, Pdoc also asked me why I wasn't trying to retrain for a job, etc. because I'm "so intelligent." I had relive how I tried to work with my state's rehab commission and they couldn't even give me a volunteer position.... and when my PCP found out he asked me why I was trying that, and told me I had to accept that I would never work again....
He's right. It's a combination of physical disabilities, cognitive problems, and the unpredictable fatigue- expected to become worse, not better.

It's like she was picking at my emotional scabs!

Dear Kay,

Do you have any way to get far away from this pdoc?
It would be better to almost have no pdoc than to see this pdoc anymore.

I would report any violations you can think of.

. .. .and yes, this gets my goat.

M.

Thanks Mari. It gets my goat, too.

I have an appointment with the pdoc next month. I'm going to try to redraw the boundary lines. If that doesn't work, I will be switching pdocs.

The need to protect myself is ingrained in me now, but I also want to give this lady an opportunity to redeem herself; and I feel like I need to explain to her in person what my concerns are and how all of this made me feel.
---

I heard back from the GYN today. The ultrasound showed the cysts are the same size, but no uterine fibroids!!! She assured me there is no reason to be concerned at this point, and I will have a follow-up ultrasound at the end of June. This is good news!
---

My husband's vacation begins tomorrow. It will be nice for him to reboot, and I'll be happy to have him home with me. I just hope he doesn't think he's going to sit on his **** for 10 days.

Sunday we go to my nephew's 4th birthday party. I got him a big, soft tyrranosaurus rex that moves and has light up eyes! I like it... I hope he does!
There's usually a bunch of kids running around, and I get scared they'll knock me down. So, I usually have to leave early. I'll stay as long as I can tho.
---

I have 3 cats. I got 2 automatic cat boxes because they're easier for me to clean. The cats haven't had issues with them, but since moving to the new apartment big kitty had been peeing on the rug. Last night, my husband found a big mound of poop (I know it's big kitty's because of the size) no where near the box. The boxes are clean.

I'm tired of trying to get down on the floor constantly to try cleaning pee up. Even though they will be harder for me to clean, I want to buy regular cat boxes, and start using regular litter again (the autoboxes need crystal litter). My husband doesn't want to spend the money. It won't be too expensive. I think I'm going out today to buy them anyways- this cat can't continue peeing on the carpet of our RENTED apartment!

I am happy that you have had some good news.
yeah!
it really sucks that you had to spend your hour talking about another patient....very unprofessional. I think I would put it in writing and send it to her ahead of time.:mad:
hope you enjoy your hubby being home and yes I hope he is helpful to you.
((((((HUGS))))))
bizi

Dear Kay,

'Thinking about you.
M.

Thank you ladies :hug:

I'm holding my own. I do enjoy my husband being home, but he is not very helpful.

Before I see pdoc next time, I'm going to write down some points I want to cover. I think that will help me get it all out and express myself better.

Kay

Sounds like a good plan
Donna:grouphug: