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-   -   I have a GI bleed (https://www.neurotalk.org/bipolar-disorder/147040-gi-bleed.html)

mymorgy 04-14-2011 06:19 AM

thank goodness it is over....you did great. so glad things were caught in advance re sedation.
bobby

OhKay 04-14-2011 03:08 PM

Thanks :grouphug:

I'm glad it's over, too!!!
I'm back to normal now... just tired, sore hand... no big whoop.

Called the gyn for ultrasound results, waiting for call back.
Called MS NP re: neurontin increase she promised to get back to me on (on the 5th), waiting for call back.
------

Forgot to tell you guys, I saw the pdoc on Tuesday. She had a lot of questions about MS, disability benefits, etc. for an unidentified pt. She has already asked me many questions before. It took up almost the whole appointment (over an hour) this time... only about 10 minutes actually discussing me and my meds.

I was very drained and upset by the appointment. I don't enjoy indiscriminately revisiting my early dx or fight for disability, or educating everyone who has/has a pt. who has MS. I have enough going on in my own life!

Not everyone with MS is disabled according to SSA standards- most aren't. This pt. has challenges, but is still working full time, so is NOT eligible for SSDI at this point, and I told her this- her patient should speak to her neurologist and get the advice of a lawyer. She still thinks this pt. should get SSDI.

Pdoc was trying to walk me through a print out of outdated (2003) info about MS. I told her she wasn't showing me anything I didn't already know, yet she continued "explaining" this info to me. I told her that she needed to consult the more current info that is available- as an NP, she should already know that. I should have reminded her that she is not a neurologist.

Eventually I told her that I didn't want to talk about someone else's MS anymore (I had already been more than patient).... everyone's MS is different and I have my own problems. I told her that her patient needs to be proactive in her own care, advocate for herself, and consult her neurologist. She understood, apologized.

I feel for her pt., but going through all of that is not my responsibility- And I don't like the blurring of boundaries....

Upset that she is talking to me about another pt. and divulging why tdoc has been out (fall down the stairs... badly broken ankle). Pdoc actually told me that this pt. was also bipolar and had a previous s/s attempt! This is not professional, and makes me wonder what she tells her unidentified patient about me. I'm also uncomfortable that she is advising this pt. on points that the patient should discuss with her neurologist- not a MH NP.

The good news is she is okay with me flying solo until my regular tdoc returns.

Pamster 04-14-2011 03:22 PM

So relieved they didn't see any tumors! That's awesome Kay! I am so glad you managed to geth through it well. You are right to feel the way you do about the pdoc situation. That would disturb me too. :( I don't know why they do that to us, I have had tdocs do that to me too, on all counts, asking about SSDI and my disability (the amputation and use of a chair) and it always dredges up a mess for me to cope with on my way home and the following days. Hang in there, I hope it passes quickly, I know pdoc was just wanting to help the other pt, but it at the cost of YOUR peace of mind and time with pdoc, that's not too cool. :( Hope you feel back to normal soon! :D

Dmom3005 04-14-2011 03:32 PM

Kay

Hmmm, I would send the company she works for a bill for the hour
she grilled you. This is something you at least shouldn't be charged
for. Or your insurance.

Dnna:grouphug:

OhKay 04-14-2011 04:10 PM

Thanks Donna :hug:
I would send that bill, but I don't want to get her into trouble for divulging patient info- a possible HIPPA violation. I think I will warn her about that....

Pam,
Thank you for understanding how it feels when they dredge up all that crap :hug:... becoming disabled, the losses you suffer because of it, and fighting for disability is traumatic enough...

During that appointment, Pdoc also asked me why I wasn't trying to retrain for a job, etc. because I'm "so intelligent." I had relive how I tried to work with my state's rehab commission and they couldn't even give me a volunteer position.... and when my PCP found out he asked me why I was trying that, and told me I had to accept that I would never work again....
He's right. It's a combination of physical disabilities, cognitive problems, and the unpredictable fatigue- expected to become worse, not better.

It's like she was picking at my emotional scabs!

Mari 04-14-2011 05:50 PM

Dear Kay,

Do you have any way to get far away from this pdoc?
It would be better to almost have no pdoc than to see this pdoc anymore.

I would report any violations you can think of.

. .. .and yes, this gets my goat.

M.

OhKay 04-15-2011 11:16 AM

Thanks Mari. It gets my goat, too.

I have an appointment with the pdoc next month. I'm going to try to redraw the boundary lines. If that doesn't work, I will be switching pdocs.

The need to protect myself is ingrained in me now, but I also want to give this lady an opportunity to redeem herself; and I feel like I need to explain to her in person what my concerns are and how all of this made me feel.
---

I heard back from the GYN today. The ultrasound showed the cysts are the same size, but no uterine fibroids!!! She assured me there is no reason to be concerned at this point, and I will have a follow-up ultrasound at the end of June. This is good news!
---

My husband's vacation begins tomorrow. It will be nice for him to reboot, and I'll be happy to have him home with me. I just hope he doesn't think he's going to sit on his **** for 10 days.

Sunday we go to my nephew's 4th birthday party. I got him a big, soft tyrranosaurus rex that moves and has light up eyes! I like it... I hope he does!
There's usually a bunch of kids running around, and I get scared they'll knock me down. So, I usually have to leave early. I'll stay as long as I can tho.
---

I have 3 cats. I got 2 automatic cat boxes because they're easier for me to clean. The cats haven't had issues with them, but since moving to the new apartment big kitty had been peeing on the rug. Last night, my husband found a big mound of poop (I know it's big kitty's because of the size) no where near the box. The boxes are clean.

I'm tired of trying to get down on the floor constantly to try cleaning pee up. Even though they will be harder for me to clean, I want to buy regular cat boxes, and start using regular litter again (the autoboxes need crystal litter). My husband doesn't want to spend the money. It won't be too expensive. I think I'm going out today to buy them anyways- this cat can't continue peeing on the carpet of our RENTED apartment!

bizi 04-15-2011 11:49 PM

I am happy that you have had some good news.
yeah!
it really sucks that you had to spend your hour talking about another patient....very unprofessional. I think I would put it in writing and send it to her ahead of time.:mad:
hope you enjoy your hubby being home and yes I hope he is helpful to you.
((((((HUGS))))))
bizi

Mari 04-19-2011 11:56 PM

Dear Kay,

'Thinking about you.
M.

OhKay 04-20-2011 11:14 AM

Thank you ladies :hug:

I'm holding my own. I do enjoy my husband being home, but he is not very helpful.

Before I see pdoc next time, I'm going to write down some points I want to cover. I think that will help me get it all out and express myself better.

Kay


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