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Old 11-13-2011, 04:50 PM #1
Dmom3005 Dmom3005 is offline
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Default Need some advice on Gabapentin, or stronger Fibromyalig meds.

Hi, I've been asked if I need to change meds for fibromyagia.

I told him no because of the price. I know I can't afford lyricia.
And I can't even afford to take more of the gabapentin.

I really believe even just one or more of the pills would work.

But I did get permission to change to twice a day, to see if this
helps me remember and make sure I get the whole 900 dosage.

Thank goodness. I am not sure what to think.

Any ideas, I have restarted my iron pills just this weekend, it dawned on
me they were missing. I still take magnesium and cinnamin.

But that is about all I can afford, or remember to buy.

Donna
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Old 11-13-2011, 05:08 PM #2
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Red face Guaifenesin?

Guaifenesin has been tried but i am not sure of proven effectiveness and it is not free of caveats. at i glance i saw for instance you can't have salicylates in your system.

i don't know anything about the dosages involved, nor whether there are risks for special populations (diabetics, hypertensives etc)

not sure of cost.

here are some links for further reading...

Fibromyalgia Treatment Center / Guaifenesin Protocol
Dr. St. Amand’s method for diagnosis
(c) 2000-2009


the following article includes comments on the protocol above:

The Truths and Myths of the use of Guaifenesin for Fibromyalgia
by Mark London
Last modified: 12/05/2010 15:47:42
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Old 11-15-2011, 04:55 PM #3
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Quote:
Originally Posted by waves View Post
Guaifenesin has been tried but i am not sure of proven effectiveness and it is not free of caveats. at i glance i saw for instance you can't have salicylates in your system.

i don't know anything about the dosages involved, nor whether there are risks for special populations (diabetics, hypertensives etc)

not sure of cost.



Guai didn't show any positive results during double blind clinical testing so I'd look eleswhere.
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Old 11-15-2011, 05:01 PM #4
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Quote:
Originally Posted by Dmom3005 View Post
Hi, I've been asked if I need to change meds for fibromyagia.

I told him no because of the price. I know I can't afford lyricia.
And I can't even afford to take more of the gabapentin.

I really believe even just one or more of the pills would work.

But I did get permission to change to twice a day, to see if this
helps me remember and make sure I get the whole 900 dosage.

Thank goodness. I am not sure what to think.

Any ideas, I have restarted my iron pills just this weekend, it dawned on
me they were missing. I still take magnesium and cinnamin.

But that is about all I can afford, or remember to buy.

Donna
Get your Vit D measured and boost it up as high as possible. Helps with pain. Prescription drugs - have you tried mirapexin? - it's a dopamine enhancer which helped me for a while until my stomach couldn't take it anymore. Don't know how much that costs in the US.
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Old 11-15-2011, 06:12 PM #5
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Thanks I will look into the Vit D.

I think there is some in the kitchen

My husband has a collection of vitamins.

Donna
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Old 11-16-2011, 12:57 AM #6
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Thumbs up

Donna.

make sure the Vit D is vitamin D3 (cholecalciferol). this is readily available OTC in the US, even in high doses capsules. when you first start using it, you will have to request regular testing 3-6 months a year (depending on the dosage you start on).

If it is obtained by prescription, only vit D2 is prescribed which is not well utilized by our bodies. (i.e., useless). goodness knows why they are still prescribing that kind there. but anyway.

a caution:

be very careful if you also supplement with calcium (until you establish the correct vit D dose to take, you should probably avoid it but talk to your doctor.) this is because vit D increases calcium absorption, and there is a risk of hypercalcemia. this typically happens only with very high levels of vitamin D, but if you take calcium as a supplement also, then all bets are off.

i hope you find what you need to help ease your pain. i am sorry you suffer from fibro and that you are having a bad flare

~ waves ~
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Old 11-16-2011, 05:36 PM #7
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Thanks Waves

I wondered because I do take calcium sometimes it has Vit. D in it.

I have two kinds, I have to take a very high amount per doctor.

And I can't handle the pill the Vit D is in more than one pill a day.

So the doc said to take the rest in just plain calcuim.

So guess I get enough that way.

Donna
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Old 11-22-2011, 07:55 PM #8
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Default Gabapentin

Okay I am getting my Gabapentin,

1 in the morning and 2 at night. This is working great.

Now I'm working on trying to get my vitamins straightened out.
I started my magnesium again. And my iron, I also need to take
a calcuim or multi vitimin. I'm working on which or what.

I believe its going to have to be a calcuim, because my body reacts to the
multi-vitimans.

My massages are doing lots of good, I need to figure out a way to go to twice
a week. IF at all possible one hour, instead of two hours once a week.

THis would probably help me. So I'm going to work on this in December.

Hopefully my schedule will slow down. I have a appt with my primary also,
so I'm going to see about replacing my cymbalta, unless it looks like my
insurance is going to be re-instated soon. It could be very close.

My husband is getting close to having 400 hours in now. And still hopefully
will have a job. We wait to find out.

Donna
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Old 11-22-2011, 08:41 PM #9
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Heart good luck

Good luck with this Donna.

hopefully getting the massage schedule adjusted will be doable.

i do hope your insurance gets reinstated quickly. it sucks not having insurance and needing all kinds of meds.



~ waves ~
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Old 11-23-2011, 03:13 AM #10
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Quote:
Originally Posted by Dmom3005 View Post
ry close.

My husband is getting close to having 400 hours in now. And still hopefully
will have a job. We wait to find out.

Donna
Dear Donna,

We will hope along with you.

M
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