Kay,

Congrats on your six months! :You-Rock:


M

Kay,

6 months while working through all your stresses is a true achievement. Congratulations.

:trampoline::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::trampoline:

Dave.

Kay

Love the news 6 months is fantastic.

Donna :hug::grouphug:

Thank you all! :group hug:

I need coffee to function.
Yesterday No Coffee: I couldn't make it past 10 without canceling my appointment and going back to bed… "exhausted" isn't even the word. I slept until 2:30. I was dragging *** when my husband came to collect me to go food shopping around 3. Asleep by 9.

My MS is having more power over me lately as it is. I didn't need to be reminded yesterday what life's like without coffee, although I do have the occasional day like that with it.

I'm just so ****ing frustrated dealing with this fatigue all the time…

Kay

Sorry it ended up that way. I'm just curious do you take iron. I found
it helps my fatigue.

Donna :hug::grouphug:

yes kay you could be anemic, how is your vit d level?
bizi

Kay,

That is frustrating.

I hope you have good days.


M

I'm know I'm not anemic because the CBC with differential I had done a couple of weeks ago came back normal.
I've never taken iron. I may be deficient even if I'm not anemic. I'll ask my PCP about it.
The only vitamins I take are B12 and vitamin D (as D3). They're both usually low in MS patients and have to be supplemented. Both levels were normal.

This all fits the usual MS pattern. For some reason it's just worse for the time being.

I have an appointment with my neurologist next month, but there's no point in moving it up. There's nothing he can do. There are meds they use to treat MS fatigue, but they're all stimulants. I tried them years ago and they made me go nuts. I can't take them.

This is just a part of MS. For most people (including me) it's the worst symptom. I'm not really looking for answers. I'm just venting because I feel really ******.

vent away my dear!
sorry for your fatigue....
((((HUGS))))
bizi

I see my pdoc on Monday…

I'm on 750mg of Seroquel. 100mg in the am 650mg at night.
I know I need to be on 750mg…

I'm going to ask her if I can just change the way I take it- by moving 50mg to the night dose- to see if that will help with my fatigue.
I know that the timing of seroquel can be funny. Reducing the daytime dose may mean that the PTSD sx and/or the intrusive thoughts may come back, but I can always revert back to taking seroquel as I do now if they do. Reducing the seroquel during the day won't fix the problem, but it could help. I think it's worth a try.

I haven't been having much anxiety (I guess I'm too tired lol) so I haven't been taking klonopin most days. I haven't noticed a difference between the days I do and the days I don't. I think the coffee takes care of that.

Those are the only 2 meds that could be contributing to the fatigue. I haven't come up with any other aggravating factors yet.