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Old 12-14-2016, 07:11 AM #491
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I don't take any meds to treat MS or its symptoms, although I have in the past. That's something that's not going to change at this point. I would consider going back to PT if I'm not compensating well enough for the gait changes by the time I see my neuro.

I had a really hard time with the Christmas cards. I have OCD and am very particular about the presentation of things like that, but after a couple of breaks didn't improve my penmanship, I let it go. Everyone on my list knows I have MS, and I'm sure they'll understand why their cards aren't addressed perfectly. I don't do a lot of writing, so my hands hurt.
I'm still waiting for two addresses from my aunt, and will have my husband sign a couple of cards this evening because I'll have my MIL's Bday card by then. I hope to mail them all tomorrow.

I have an appointment with my pdoc at 8:30am!
I'm always up early, but I like to veg for a while before I go out. I have to straighten out my scripts with her because CVS made a mess of things. Right now I'm stable and have no complaints. There's a strong possibility I may have issues down the road, but I'm trying to stay positive and hope some heaping doses of denial will help.
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Old 12-14-2016, 09:53 AM #492
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By now you are will be having your appointment with your pdoc,
hope it goes ok and that they can fix your scripts.
Well at least you have options for meds if you want them in the future....
I thought you were on them already sorry.
How did you feel when you were on them before?
love you
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 12-15-2016, 12:09 PM #493
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I wrote down what I did and didn't have for scripts before going to my pdoc appointment, so we got all of that straightened out. If something ends up going awry, it will be okay because she's pretty good about getting refills to the pharmacy when I need them.

I've taken two different disease modifying drugs (drugs that are intended to reduce the number and severity of relapses), but they didn't work because my main problem is with progression vs. relapse so I see no point in putting any of that **** in my body anymore, and have no plans to do so in the future.

I have decided not to take any meds to treat my MS symptoms either because I'm on 9 other meds right now. Treating my BP is my main priority. It is hard enough trying to get/keep me stable, and I don't want any other drugs to make that more of a challenge. I also know that the combination of the meds I already take, and the meds to treat my MS symptoms would totally zombify me. I have enough cognitive challenges already and I sleep enough of my life away, so I'll just suck it up until I absolutely can't anymore.

I'm sorry if that comes off angry. I'm not angry at you. I'm just going to be a little angry for a little while. I've been dealt a bad hand, but these are my choices, and that's why I made them.
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Old 12-16-2016, 12:13 AM #494
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You have every right to be angry.
You did not ask for MS.
I think you are brave in the way you struggle to live your life.
(((((HUGS and love)))))
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 12-16-2016, 07:47 AM #495
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Thursday is my day to play the lottery and to get a coffee at the Dunkin's in the convenience store. I also had to buy stamps and mail my Christmas cards, and planned on going grocery shopping. It was supposed to be 26 out, but it was really windy and there were 45+mph gusts, and I was being blown about like a paper doll, so I took a pass on the food shopping.

It's 1 degree out right now, and the "feels like" temp is -14. But it's supposed to get up to 18 later, and the wind chill advisory is only until 9am. My husband doesn't want me to go out today because it will be too cold, but I don't want to do food shopping in the snow tomorrow. I guess I will wait to see how I feel later and decide what is best for me. If I go tomorrow it will have to be very early.

Sunday it's supposed to get up to 54 degrees with a low of 15! That's just nuts!

Since I didn't go grocery shopping, I have no pop tarts and no bread for toast. My breakfast this morning is a Reese's peanut butter tree
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Old 12-16-2016, 08:36 AM #496
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burr!!!!! 45 mph winds!!!!!
I am sorry that it is that cold maybe you can just hunker down eating trees until it is warmer?
(((((HUGS)))))
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 12-18-2016, 10:57 AM #497
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I should have trusted my instincts and gone grocery shopping on Friday…

When I opened the door to go out on Saturday I almost turned around because there was a lot of snow and they had not shoveled the stairs or the walkway, but I'm a jackass, so I went out anyway.

My main problem was getting back into the apartment from my car (my husband carried the bags) because the walkway is a little uphill.

I should not have gone out, but I made it back safe. I was lucky this time, but there's no need to tempt fate… I won't be making any trips like that in the future.

Football at 4:25pm today. Yay!
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Old 12-18-2016, 02:00 PM #498
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you were lucky and did not fall.
(((((HUGS and LOVE)))))))
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 12-19-2016, 07:30 AM #499
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I didn't have a good weekend. There's been a string of those. My husband's been so, um, unpleasant lately, and it's wearing on me. I'm really upset because of his unwillingness to help me this weekend, and his uncharitable attitude when he did. You wouldn't want to ask for his help either.
He does nothing at home, with the exception of taking out the garbage when he feels like it, unless it serves his own wants or needs, and then he wants a ****ing trophy for doing it. If I had the money, I'd hire someone to come in for a day to take care of all the **** that he's been neglecting that I can't do myself.

Sorry, just venting.

I have errands to run today. Everything that melted yesterday has surely frozen. I can't hide inside all winter, but I can be smart about going out. If the steps are covered with ice when I open the door to go outside today, I'm going to call the office and tell them I need someone to come over to treat them before I will go out.

Because the football game was on at 4:30 yesterday, I ended up missing about 45 minutes of it making dinner. I hate that. There were no scoring plays during that time, and Pats won though.
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Old 12-19-2016, 08:45 AM #500
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I am sorry about your hubby.
Wish things were different for you.
(((((HUGSand love)))))
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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