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Old 03-22-2018, 06:44 PM #51
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Kitty

Good Ideas. I also Can't see the hospitals not having things to
help people period.

Donna
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Old 03-22-2018, 10:59 PM #52
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Quote:
Originally Posted by OhKay View Post
BF, I recently changed nephrologist's, and I'm extremely happy that I did. The first one didn't know his ***** from his elbow, but the new one is competent and now I feel like I'm in good hands.

Is your pdoc going to write a letter to your nephrologist and/or the transplant team to notify them that they have incorrect information?
Hi Kay. I'm going to talk to my case manager about this, and talk to my Nurse Practitioner again about the matter. Thanks. BF
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Old 03-23-2018, 01:01 AM #53
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I learned when a friend had issues with two doctors who were in disagreement with each other that the hospital had a particular nurse in charge of patient care and that we could have let that nurse know that that the doctors were not
appropriately addressing my friend's needs.

Learn of the hierarchy for complaints in your hospital.
Is there an ombudsman, social worker, head of nursing?

I am so happy to hear that your nurse is helping.


M
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Old 03-23-2018, 07:35 AM #54
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Kitty,

It sounds like you have been through hell. I hope you can get out of assisted living soon.
Wishing for better things/better health for you,

Kay
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Old 03-23-2018, 06:18 PM #55
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Kitty I'm so sorry that you have been going through all of this. My sister had MS, and my mother had MS. My grandmother had ALS. This is not suppose to happen in a family tree situation.

You have been through allot. I'm so sorry. BF
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Old 03-24-2018, 06:30 AM #56
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BF,
It is rare for MS to run in families like that. I had no idea your family had been so hard hit. I'm so sorry. And I'm so sorry your grandmother had ALS

No one other than me in my family has it. Years ago my brother and I donated blood samples for a genetic study.
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Old 04-03-2018, 08:56 PM #57
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Hi friend, just thinking of you!
((((HUGS))))
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 04-04-2018, 01:02 AM #58
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Thank you Bizi. I'm hanging in there. BF
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Old 04-08-2018, 08:46 PM #59
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I don't know all of the factors involved, but I slept for 12 hours on Sunday. I could not muster any energy, and I am still tired. The medications that I'm on probably cause some of it, but there are to many things involved, and it's not knowable what the cause is. I've come to the conclusion that there are no guesses that can be made. The Kidney disease is probably a part of it, and many things combined. BF
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Old 04-08-2018, 09:00 PM #60
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you must have needed the sleep.
((((HUGS))))
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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