My doctor, and I were looking at the letter today at his office.

...After careful review it was decided by the team at this time you are not a Kidney transplant candidate due to:

Medical or psychiatric conditions determined not compatible with transplant. Your risk with transplant is determined to be greater than the actual benefit...

It's that word Psychiatric. It's that word. Due to: Medical(Stage 4 kidney disease severe)or psychiatric... That word Psychiatric. Psychiatric. I told my doctor that word has followed me all of my life. Does the word Psychiatric mean I'm less of a human? Does it mean my life is throw awayable. Are they thinking deep down with out realizing "Oh" "He's just a nut." Who's the next candidate?

The stigmatism of being labeled a person with mental illness is still out there. It might keep me from getting a transplant in the future, and I may die from Kidney failure.

I'm still thinking about that word in the letter. That word Psychiatric. It doesn't have anything to do with the need of a Kidney. BF

Dear Friend,



Lots and lots of hugs.


M

What do I do if I don't eventually get the transplant? I suppose that I will be on dialysis until I die.

This is very depressing. I think that it's the mental illness that they don't like. It's not fair. BF

this is outrageous! can you contact some mental health rights agency?Can you write to the new york times. it is barbaric
hugs
bobby

Home | NAMI: National Alliance on Mental Illness

What a crock of s***... I don't understand that rational at all.

I'm so sorry, BF

I think that discriminating against a transplant candidate based on their psych history is inexplicable and unforgivable, but the transplant program is very complicated...
The letter did say "at this time" tho, so I hope that if you begin to deteriorate, they will reconsider their position and put you on the transplant list

Most transplant recipients are on dialysis for quite a while before they reach the top of the list, get an organ, and have surgery. I hope that they put you on the list and you don't have to wait long

I'm learning about these things one step at a time. I'm also taking my situations one day at a time. Some of the operation procedures are scary, and I'm trying not to think about the details.

Some of the pre-dialysis operations are in several months. This means I'm going to need a care giver for a few days while my left arm heals. I hate to be a burden on my niece, her family, and my brother in law. I'm going to need there help. It's out of my control. It's in the Lord's hands. BF

I think you have a wonderful attitude and are taking the best approach to an overwhelming situation, BF

I agree with kay, friend.
You seem to be taking things in stride.
(((((HUGS)))))
bizi