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Old 10-16-2018, 09:13 AM #371
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Kay

I'm sorry the office only called them in yesterday. Doctor's offices
think its fine to do when they want.

Hoping the Other office calls you with an appointment or clue what
they want to do.

Saying prayers for you to get some help today.

Donna
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Old 10-16-2018, 09:31 AM #372
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I hope you get some help today too.
thinking of you this morning.
((((((HUGS AND LOVE))))))
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Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
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I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 10-16-2018, 09:29 PM #373
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I hope Kay, you get those calls tomorrow.

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Old 10-17-2018, 12:53 AM #374
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Kay,

I too hope that you get help really soon from the pdoc.

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Old 10-17-2018, 02:09 PM #375
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I don't know if I'm hypo or not. Monday I was totally off the wall, but yesterday I was pretty calm for most of the day despite anxiously awaiting that phone call from my pdoc's office. I did do some cleaning, but I wasn't driven or in a frenzy. I was doing it as more of a distraction. But I'm still having a hard time sitting still, and I can't nap even tho I've been exhausted, but maybe part of that is stress/anxiety. The s- seems to hit the fan in the afternoon for some reason. I'm okay this morning, so IDK.

I still hadn't gotten a call from my pdoc's office by 3:30pm, so I called and spoke to one of the secretaries. She said my pdoc wasn't in, and that's why I hadn't gotten a call back (yesterday). She said she would leave her another note. I have no idea what happened on Monday when she was in the office.

I don't have to wait for a call back anymore. My pdoc called:
She immediately agreed I had to stop taking the Vraylar. So, I'm doing an 11 day taper to get off of it. I'm going to take a low dose of Rexulti for a very short period of time to replace it. She's giving me samples because I can't afford it, and I picked them up today.
I'm going to have a lot of med on board, so I'm going to have to end up lowering my dose of gabapentin to reduce sedation, probably by 200mg, exactly as expected. Probably not going to reduce it tonight tho cuz I'll be cutting the Vraylar in 1/2, and I don't want to do too much at once, but I'm still thinking about that.
So, I got exactly what I wanted. I just hope that it works out the way I want/need.

I had a 10am appointment with my neurologist on Friday, but rescheduled it because I'm sure I'll be sedated for a few days and unable to drive.
I went to the butcher shop and grocery store to pick some things up so I won't have to worry about having to beg Corey to drive me later in the week, but he's going to have to drive me up the street so I can play the lottery tomorrow lol
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Old 10-17-2018, 06:57 PM #376
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Kay

I'm so glad you got a call back.

I sure hope this works.

Donna
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Old 10-18-2018, 07:56 AM #377
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Thanks Donna

I didn't wake up feeling sedated at all. I actually feel really good
So it was much to do about nothing... at least for now.
I'm so happy I'm okay to drive!!! I just wish I had waited to cancel my neuro appointment.

I sent my PCP a love note to let him know what's going on.
I don't know how long it will take for for my kidney fx to improve if it's going to, but he will probably decide when it's time to redraw a kidney panel *whenever* based on what I wrote to him, or when the surgeon requests it again.

Now that I'm addressing the issue with my kidneys, and I feel like the mental health piece is falling into place, it's time to start figuring out what's going on with the surgery...

My surgeon is back in her suburban office tomorrow, and that's the best time to reach her. The last time I talked to her:
1) She was waiting for the results of the repeat blood work, which was (finally) faxed to her Monday
2) She was waiting for X-Rays from a test from my local hospital, which they probably had to mail to her on a CD, but she should have it by now, and
3) She wanted to talk to my gastro, who is hardly ever in the office

So, maybe that's why I didn't hear from her last week, but the fact that I didn't still makes me nervous. I'm going to call her office today to get a jump on things. Maybe I will get a call back today. Who knows? My surgeon is very nice, so I'm pretty confident I'll get a call back by tomorrow at the latest because I think she will understand my anxiety at this point.

If she wants to wait to schedule the surgery until my kidney fx starts to rebound, that makes sense, so I will have to accept that.
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Old 10-18-2018, 09:28 AM #378
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Kay

I'm hoping that she will have an idea how long it will take
for the kidney's to rebound.

Maybe if nothing else she will be able to set the surgery
for a month or so.

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Old 10-19-2018, 08:55 AM #379
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My PCP got back to me, and wants me to have my blood drawn in 2 weeks to check my kidney function. I think that there will probably be some improvement before then, but the timing does make sense to me.


I just feel like I'm forever shoveling s- against the tide.

I called my surgeon's Boston office yesterday, and talked to her secretary, who sounded like a half-asleep moron. I told her I was calling about the status of my case because somebody was supposed to call me to schedule my surgery last week, but I never got that call...

She said something about records from another hospital, and wouldn't answer me when I asked if she got them or not. She said she would talk to the doctor and call me back, but never did. I assumed she meant the x-rays from the Sitz marker study, so yesterday I requested a CD of the images JIK, and can pick it up today.

I called the Boston office again this morning to ask where to mail the CD, and got the same moron, who had a hard time even telling me the address where to send it to, and when I asked her to double check if the doctor needed anything else, all she said was the hospital, "sent over a bunch of stuff."

But she said the surgeon was going to call me today. I hope she calls early. I'm sick and tired of waiting around for calls from medical providers
I have plans to leave the house today, and my worst fear is that she will call when I'm driving because I will not answer the phone when I'm driving.

At least I hope to get some answers today.
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Old 10-20-2018, 10:27 AM #380
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Not a word from my surgeon or anyone in her office(s) yesterday.

I'm very disappointed/unhappy about that.
I'm glad I didn't stay home-bound waiting for her to call me. I had several errands to run that had to be done yesterday since Corey needs the car today to go do some slave labor for his step-father.

My gastroenterologist called me in the evening to check in with me tho. He's a very good doctor,, and he is on board with the surgical plan. He said the surgery will be very hard, but thinks it will give me better control and a better quality of life...
He said he "connected" with my surgeon in some way (3 days ago now), but she may be waiting to talk to him, and that may be part of the delay. He said he would call her on Monday. He told me if I haven't heard from her, or anyone in her office, by Tuesday, to call his medical assistant, and she would try to grease the wheels. I don't think that would help tho. His medical assistant has no follow-through, and I've already mentioned how "impressive" the surgeon's secretary is in her Boston office.

I understand that the surgeon has a lot of medical records to review, wants to talk to my gastro, and IDK what else, before she books a date for surgery, but because of the silence, I'm starting to feel like it's never going to happen, and that's very upsetting. And the longer that silence goes on, the longer the wait will be before I have the surgery, if at all. I just wish someone would call me to give me some kind of update.


I feel absolutely terrible this morning. I feel dizzy and lightheaded like I did when I was having side effects from my meds before. I checked, and I didn't make a med mistake. I took my night pills 10 hours before I woke up.

It's probably because I'm on 3 atypicals (2 of them in low doses tho) and the Rexuti is starting to kick in (3 nights on it). I think tonight is probably a good time to cut back on the gabapentin by 100mg, and see if that helps at all, and hopefully my body will start to adjust to the new med, and SOON.
Next Wednesday night, the Rexulti goes up to 1mg, and I'll only be taking 1.5mg of Vraylar for 4 days. I think I'll have a hard time for those 4 days.
I'll call my pdoc if I have any kind of problems handling the meds, and maybe she can alter the plan.

Despite everything that's been going on, my mood has been good. So, so far the taper is going smoothly in that regard. I hope that doesn't change the longer I take the 3 atypicals together, I raise the Rexulti, or if I reduce the gabapentin dose tonight.
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