It was south carolina.

Do you guys play the power ball?
It is up there now too.


bizi

We have Powerball here. Nobody won last night, so the jackpot is $750 Million now!!!

I don't know what the delay is with scheduling the surgery. When I talked to my surgeon she said her admin would call me after she spoke to my gastro...
So I called my gastro's office yesterday to ask his medical assistant to check my chart to see if he ever DID talk to my surgeon (I'm going to be wicked PO'ed if he didn't), but she was busy and I had to leave a message. Of course she never called me back. I wanted to know if he did so I could have that info when I called my surgeon's admin.

I guess I'm waiting for 2 phone calls now?

I don't know why I'm not being more aggressive about this like I normally would be. I'm just going to call my surgeon's admin directly this morning... at like 9am... and ask WTF the hold up is. That will give them 2 full days before the weekend to get back to me.

After I had my Tysabri yesterday, I got my haircut. I had her leave a little extra, so she only took a little over 2" off. I had her blow-dry my hair, so Corey got to see it down. He couldn't believe how long it still was, but he also gave me lots of compliments. I planned on coloring my hair this morning, but I don't think that's a good idea since I'll be waiting for phone calls. But whenever I do it, it will be the last time. It's so hard to do, it's worth paying Joanie to do it for me.

Today is lottery day, so I have to go up the street to play my numbers (and buy some extra Powerball tickets). Otherwise I have no other plans for the next two days, but I need to get some cleaning done.

On second thought, I will take a shower before I make any phone calls so I don't have to worry about getting a call back when I'm soaped up or have shampoo in my hair.

Good idea Kay.

Maybe go get your powerball and other lottery tickets too.

That way you don't have to worry about them calling while
gone.

Donna

After some phone calls yesterday, I found out that my surgeon hadn't given her admin the slip to book my surgery yet, she DID talk to my gastro on Monday, but she called the office back to ask for the phone number of my nephrologist (who is a very busy man). So, I guess she's just been being thorough because of my multiple medical problems- without updating me.

But, I JUST got a phone call from my surgeon's admin. My surgery is scheduled for November 21st (the day before Thanksgiving) at 7am, and I have to go for pre-op on November 12th. I was offered a date the week of the 5th, but felt that was too soon. I'll be getting details/directions in the mail.
I'm very relieved to have the surgery scheduled. It's one step towards feeling better. I'm also relieved not to have to make or wait for phone calls anymore.

But now I have to call and let my family know
It's too early to call my dad. He won't be up for another 2 hours or so.


In other news, when I increased the Rexulti to 1mg Wednesday night, I woke up yesterday with some pretty bad shaking in my arms, which can be a side effect. So, my pdoc lowered the dose back down to o.5mg, and the shaking is better today. I'm having an increase in sensory symptoms in my arms and hands, but I don't know if those are from the Rexulti or from MS. I sent a love note to my neuro yesterday asking him his opinion. Those symptoms are unchanged this morning.
I'm down to 1.5mg of Vraylar, and even tho I'm back on 0.5mg of Rexult, I feel overmedicated (but not sedated) this morning, and feel like I could benefit from lowering my dose of gabapentin by another 100mg, but am weary of doing that since I'm not going to be on the 1mg of Rexulti as planned. So, I will wait and see how I feel tomorrow morning.

Waiting until the 21st to have surgery will give my pdoc time to make sure I'm stable for surgery. And I know she wants me off of the Rexulti quickly. I'm stable now. I see her the 5th, when I've been on it for about 3 weeks or so. We'll see what she wants to do.

I have to go out to buy a new pill cutter today, so hopefully I can cut those 1mg Rexulti pills better and without crushing half of them. They are tiny! I can't evenly split the new blue Klonopin pills either. The blades of all of mine are really dull from cutting huge 400mg Seroquel pills.

Kay

I'm glad you have a way to help with the problems on the meds.

I'm guessing there is no way to go down just 50mg on the
gabapentin. I think I remember them to be capsules.

Wish you could. But hoping things are better tomorrow.

I'm glad your surgery is scheduled. I'm also going to
guess that the day before Thanksgiving is much better
for Corey.

Donna

Thank you for the update.
surgery scheduled, good. not having to wait on phone calls- priceless.
bizi

I'm happy to hear you have good news from the surgeon, Kay.

LOL...
You got that right!

Donna, I think you can only get gabapentin in capsules until you get up to 600mg. I have 100's, 300's, and 400's in capsules to make up my various and ever-changing doses. I'm on 700mg right now.

I feel overmedicated again this morning... dizzy, lightheaded, shitty... so I think I will reduce my dose of gabapentin by 100mg and see if that helps like it did last time. If I have problems, I'll just raise it again. Saturday is my last night on Vraylar, so we'll see what happens.

Yesterday I tested my sister and told her I needed to talk to her about something important and asked her to please call me. She never did. It's no big surprise because she's an a/h. If she doesn't call me by this evening, I am going to just text her, "having my colon out on the 21st."
My dad will probably be in Florida when I have surgery. That's okay tho. I don't expect him to hang around for it.

Corey and I are going to have Thanksgiving dinner together the weekend before I have surgery. Otherwise, neither one of us would get our turkey

I finally got Corey to agree to go get his haircut. I guess I have to go with him, but that means he's stuck going food shopping with me hee hee hee

clever i enjoyed that