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Old 08-14-2018, 10:14 AM #151
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Kay

No reason to be sorry. You take things as slow as you need
with responding. We all realize its what you need to do.

Donna
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Old 08-14-2018, 12:43 PM #152
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just a quick note, like I am fine or not fine so we can hear from you.
I worry when I don't hear from you.
(((((HUGS)))))
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 08-15-2018, 07:45 AM #153
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On Sunday, I was so FOS and gas, I was having sharp left-sided abdominal pain, and it hurt very badly just to sit down, so I had to take mag. citrate Sunday night and I spent over 3 hours on the toilet Monday, so that's why I never got around to posting. I'll have to take mag. citrate again tonight
Please don't try to recommend any laxative, etc to me. I have major colorectal problems, and only mag. citrate works. I have a gastro, and we've tried everything.

The surgeon I saw yesterday said that my swollen lymph nodes were small, and only felt larger because they are in a chains, and I'm thin, so they are more pronounced (I'm not that thin. I'm 5'8" and weigh 140lbs). He explained that the high eosinophil count I've been having for the last year could be due to medication interactions/side effects (something that my PCP never said). Obviously he declined to do a biopsy, but I asked his opinion about what was going on, and he said that he thinks my problems are due to a combination of my MS, all the heavy medications I take, and psychiatric issues (I don't agree with him there).

I figured that the appointment would be a waste of my time, but I feel like it was productive. I'm relieved that he said that the lymph nodes were nothing to worry about, and I appreciated his feedback about the relationship between my meds and the abnormal blood work. He's yet another doctor who has told me that my medications are the culprit.

I went back, and checked the side effects of Seroquel, and it could have caused/could be causing all my symptoms...
So that leaves me with the decision of whether or not I will be changing from Seroquel to another heavy hitter or not, and when. My pdoc and I discussed that topic briefly the last time I saw her. I'm hesitant to make a change because I'm stable, and I don't want to wind up in the nut house for the 3rd time.

I need to have some pretty serious colorectal surgery to repair a sigmoidocele (herniation of the sigmoid colon), a rectocele (thinning of the wall between the rectum and vagina), and rectal intussusception (rectum is folding over itself). I don't know if I should make a med change before or after I have that done, but I'm absolutely f- miserable in the BR department, so I would like to have it done sooner rather than later...

I will rely on the advice of my pdoc and my gastro than my PCP because they know me much better, and will know whether or not I should make that med change before or after surgery.
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Old 08-15-2018, 08:16 AM #154
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Thank you for posting, sorry about your br problems. You have struggled far too long in my books.
I am glad that the surgeon did not believe you needed a biopsy.and eased your mind a bit.
Who would do you colon surgery?
Have you gotten that far yet?
bizi
thinking about you and the challenges you over come each and every day.
(((((HUGS))))
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 08-15-2018, 09:07 AM #155
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My gastro refers cases like mine to 2 surgeons at different hospitals in Boston. They gave me the names of them, and they are both very experienced in these types of complicated surgeries, but how should I know which one to choose? I would like my gastro to tell me which one he thinks would be best for me, and set up a consultation.

I'm waiting for a call back from my gastro's medical assistant so she can relay my message and I can get his opinion about whether or not I should try a med change before the surgery.

I don't see my pdoc for another month. I can call to try to get any earlier appointment...


I have a HUGE to-do list. I'm kinda paralyzed by it because I have no idea where to start
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Old 08-15-2018, 09:11 AM #156
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I hope you get the referral.
((((HUGS))))
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 08-15-2018, 10:18 AM #157
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Good luck Kay.

I think if it was me I'd want the surgery first. I'd like to know what
my meds are doing. Even if its bad.

Donna
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Old 08-16-2018, 08:37 AM #158
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My gastro highly recommends I have the surgery, and it's already been decided that I will, provided one of those surgeons agrees to do it. His office staff will set up an appointment for the surgical consult when I'm ready. So that's no problem.

Donna, I definitely do want to do the surgery first. I just don't know if they will be okay doing it since I haven't been feeling well tho... and I think that my PCP will think that this is coming out of left field.
I think a med change will be a total s- show, and it will take forever to get me stabilized on a new medication, and I don't want to wait that long. I could also end up much worse off than I am now.

So I may just say that I don't want to f- around with a med change before I have it done, and see where that gets me. I've been thoroughly worked up, and they couldn't find anything wrong with me, so maybe that will fly. IDK.


I love my kitties, but I HATE them right now.
Yesterday I woke up to puke all over the carpet in the spare bedroom, and one of them had either pooped on or kicked poop onto the rug in there, too.
And if that wasn't bad enough, Dottie "missed" the box in the kitchen again, and got pee all over the litter mat and it leaked under the box onto the floor.
Later, I found more puke in the spare bedroom when I went in there to iron a shirt

Then the next thing on my to-do list became cleaning out the tub and shower because the tub doesn't drain well, and Corey never rinsed it out after he took his shower Tuesday night, so there was s- all over the bottom of the tub (he must have been f- filthy). That took me over an hour (I have to actually get in there to do it), and I never got around to doing the sink or toilet.

I got pretty much nothing done on my to-do list yesterday, and I don't have high hopes for today... it's already 9:30.
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Old 08-16-2018, 09:02 AM #159
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I know you love your kitties,

they can be a lot of work for such independent cats.
We continue to find throw up on the hard laminate floors, hazel usually throws up just liquid so it dries and then you notice it a day later so then who ever finds it cleans it up.
It is supposed to work that way. Jeff will ignre it and I will eventually clean it up.
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 08-16-2018, 10:34 AM #160
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Kay

I think you can tell the surgeon and the rest the first step to feeling
better is to have the surgery. Then you can work on the rest of
the things. They are all connected. Since as you say all the doctor's
agree there is nothing wrong except the meds. Heehee, if now
the surgeon says a med needs taken away for a few days before then
you talk to the other doctor's about how to do this.

That is normal for some meds as you already know.

Donna
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