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Old 07-02-2018, 12:35 PM #1
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Default What's Going On.

It was already 83 degrees when I left for PT this morning, and the pool area and water were very warm... not great conditions for me. So while I still did do all my exercises, I didn't do as many reps as usual.

If I wasn't in rough enough shape, now I have really big lumps on both sides of my goin area, and I'm getting sharp pain when I walk (and exercise). I also have smaller tender swollen lymph nodes in my armpits. I did a home test for a UTI, which was negative, and I don't have a fever or any other new symptoms aside from an upset stomach. I have no idea if this is in any way associated with the other BS I've been dealing with, or if I'm just really, really f- unlucky...
I have an appointment with the NP at my PCP's office tomorrow at 4:20pm, but if things go South before then, I'll go to Urgent Care, but someone would have to DRAG ME to the ER.

I wanted to wait to go to the dispensary to get more medical MJ until they had stuff in stock that I've tried before and had worked well, but I had to go today because I'm almost out. So, I had to buy two new kinds. I hope they work well...

I'm going to need a nap soon.
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Old 07-03-2018, 08:21 AM #2
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My anxiety has been up and down. I took an extra 1/4mg of Klonopin again this morning. I could use more, but then I wouldn't be able to drive...

I HATE that my appointment with the NP isn't until 4:20. It's nap time for me, and it'll be hot as hell out, but I had to take what I could get.
I'll give them some pee, and they can take blood, but I'm tired of all this f- ridiculous testing I've been having.

I have to hit the supermarket this morning. I was hoping to go really early to avoid the heat and the pre-Fourth of July crowd, but I also have to pick up scripts which won't be ready until 11 for some reason. It's about 9:15, and already 84 degrees out...
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Old 07-03-2018, 07:09 PM #3
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Unhappy

Take some more clonipin if you have extra.
I wonder what your NP said?
I am sorry you are going thru all of this.
((((((HUGS)))))
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Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
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I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 07-04-2018, 07:55 AM #4
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I have LOTS of Klonopin... Even tho my anxiety is highest in the morning, and I need the Klonopin the most then, I'm just not comfortable, and I don't think it's wise, for me to take more than 1 1/4mg and drive. I take more when I get home if I feel I need it.

The NP didn't seem to have much experience with swollen lymph nodes in the crotch lol So, she asked the other NP (the doctors were all on vacation) for her input. Lyme disease came up, which would explain ALL the symptoms I have been having, but that would be too easy, wouldn't it? She's testing me for that, and a UTI, and ordered a CBC with diff (that I'm aware of). My eosinophil count has been high since September, so there's that, too...

I'm so very sad because I think that my Rocky is going to leave us soon
He doesn't seem uncomfortable at all, and we plan on letting him pass away peacefully, but if he starts to look like he's suffering at all, I will take him to the vet, who would probably want me to have him put down
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Old 07-04-2018, 07:59 AM #5
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I so hope you are wrong about Rocky.
Love
bobby
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Old 07-04-2018, 08:00 AM #6
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Quote:
Originally Posted by mymorgy View Post
I so hope you are wrong about Rocky.
Love
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Thank you, Bobby.
I hope so, too.
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Old 07-05-2018, 08:16 AM #7
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Rocky's 14.
He's been up and down for days... very lethargic, has looked out of it, and at times his breathing has looked irregular... hasn't been eating, and had shown little interest in drinking water, even though I kept putting fresh cold bowls of it by him. We have been giving him lots of love and affection, and he has still been enjoying that.
I was so happy because he started to perk up a bit yesterday. He looked better, was moving around more, drank more water, ate a little, and used the box a couple of times. He doesn't look very good this morning, but maybe he will just have some good days and bad days for a while? IDK.

I'm sorry that you have to worry about Nipper like that all the time, Donna
21 is a long life for a pet... you must have loved him, and cared for him, very well.


The test for Lyme is just a blood test. It's treated with oral or IV antibiotics. I don't know how they decide which way to administer them. The test results are pending until tomorrow.

I went online and was able to get the rest of the test results tho:
I do not have a UTI, but there are signs of my kidney disease in my urine that have never popped up before (it's been apparent in my blood tho), but at least they're mild. I see the nephrologist on the 24th, and I'll have more labs, which will hopefully be better, before I go.
My total white count is normal, but my eosinophils are still high, so are my lymphocytes, and my neutrophils are low. But my WBC break down has been off since September, and there hasn't been much change. Nothing earth shattering there.
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Old 07-05-2018, 06:34 PM #8
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That is when we lost both of our cats.
very glad that you can love on him and he is receptive.
((((HUGS)))))
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Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 07-07-2018, 11:44 AM #9
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Rocky is doing much better!
He is moving around more, looking a little better, and eating again (and actually keeping it down now). He may hang in there for quite a while!
He is farting constantly tho, and they are heinous!!!

I do not have Lyme disease.
I got a love note from an RN saying that my PCP looked at my lab results and everything was "all good." lol

But... NO. I had already viewed the results on the hospital's website. And while my total WBC count was normal, my eosinophils and lymphocytes were high, and my neutrophils were low. This has been going on since September. So, I thought about it in context, and said while I was happy all the testing came back negative, I was still feeling like s- and was concerned about the WBC diff, especially since I now have large swollen lymph nodes in my groin.

I got a message back from the RN saying that she and my PCP went over my lab results and imaging "in detail," and he was ordering more blood work, an ultrasound of my groin to check the lymph nodes, and a brain MRI (I would rather have my neuro decide if that is necessary or not tho), and they would "get to the bottom of what's going on with (me)."

I had my blood drawn yesterday, and the ultrasound is on Monday. The MRI is scheduled for the 17th, but I hope it's not necessary.
I should be able to view the routine lab results tomorrow, but I don't know how long the "fancy" blood tests take.

I just want to feel better, but I'm sick of all this f- s-

In happier news, I got my nails done yesterday. They are a beautiful shade of violet
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Old 07-07-2018, 12:58 PM #10
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I am glad to hear that Rocky is doing better. I am sorry that they still haven't figured out what is going on with you, but at least they were able to rule out lyme disease.
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