Oh donna, I am sorry you have had troubles with the service providers, no you should not put up with that.
bizi

I'm sorry that Layla's meeting with the roommate didn't go well. Will they keep her where she is supposed to go, and expect the placement to work itself out, or will they find her another place?

Good for you for saying enough is enough with Derrick's provider co. I hope he ends up with one that is vastly different for the better
You fight so hard for your children

Oh Layla hasn't started to meet the new roommates, they went home to their parents for the long weekend. So we are just rescheduling it. She should meet them for the first time today. She was invited to go to the company celebration that the company has tonight. So the person that is her person is taking her.

She will have lots of fun. We are working on next week right now.

Well, now I get to start doing a medicine change for Derrick. I'm not
sure I'm going to like this. Its always scary when we change a med
when it looks like no seizures. But he is definitely having seizures in
his sleep. We just didn't know it.
We found out something interesting today, he and I. His vns will go off
on its own when he has a seizure to stop it. I never knew this. In all
the years he has had it no one has ever tried to explain it to us this way.
But one night he had two seizures or vns alerts, which is different than
just his vns going off. It was like a swipe, with at 2:30 and 5:30 am the
same night, his reading today happened. And we know he didn't swipe
his magnet.

Then we are looking into a different way to keep the magnet close to him, during the day. He was to wear it, but he never told us the main cook. Said no, he was afraid it would swipe by accident when he was prepping his food.
So he had him wearing it on his belt loop. Well the month of August somedays it went off 3 or more times in 15 or 20 minutes. During the day, when he was at work. Theres no way it would have done this like 30 or more times. Which is what I believe the girl said it had done. So we know it was
at least part of the time a problem. We believe or this is the thought that
he was walking by sterling silver and the magnet swipped. No real clue
so its back to drawing board.

So now its they are going to try a little thing around his waist, that is really
small that he can keep his magnet, and I'm suggesting tylenol. And when he gets his device for safety I'm going to maybe suggest it too. Then hopefully
this will work.

So he went from Dilintin to Lamictal, and when he was on before memory
problems happened so we are hoping not this time. But work is being told
just in case.

Donna

P.S. I did my pt evaluation today, start therapy next week.

Donna,

I hope that trying it on his waist works.

Good luck with your therapy.


M

I sure hope so too. I have never had this kind of problem.
The magnet has never gone bezerk and really alerted to things.

If I hadn't known for sure he was at work at the time the one
3 day time it went off. I would have really been worried.
I probably should have had them run the thing off and double
checked all the dates. But I really believe it was a fluke.

Now if it keeps happening I will be looking into it more.
But the middle of the night ones we are positive it was his
own body doing it.

That is what is so scary. The girls said, do you were it to bed. He looked at them like are you crazy, and said no I don't.

Donna

I'm so sorry that he's having seizures at night. I hope that the med change helps, and it goes smoothly

That is so weird about the magnet going whacky...

Today was moving day for Layla, I have kept up with her all weekend.
She didn't want to come down here. So I just kept going down and
checking on her. She was doing pretty good.

I didn't have to help her pack, and do things. Her behavior therapist
and the company helped her move. Which is the way it should be.

Now I'll just go to the meeting on Thursday and help with making
sure things are good.


Now I believe the changes of medicine with Derrick are good.
We will see as time goes on.

Donna

All of that sounds like good news to me, Donna

BTW, has Layla met her roommates yet?

I would sure hope so. She moved in yesterday. It was
an emergency placement. Because of the situation
she was living in. SOmeone finally saw it and acted on it.

Donna

Small update:

Derrick is still really happy with purdue. Its so nice to see him happy
in his job. So many never find the perfect happy job.

I'm doing good it seems. I just move along. I'm having trouble sleeping
but not sure why. But I just lay in bed and rest if not sleep till I finally
sleep which is different than usual. So its been okay.

Dan seems to be doing really good with his meds. Now if we could
just get that to work with money and get him to realize that he has
to save money to live with. Ugh, he is still living in one of our houses
with Dale most of the time. Meaning Dale is over there most of the
time. But if he is ever going to live on his own again. He will have
to pay rent, and utilities too. He has just never thought for some reason
its something he needs to do.

Not sure why or what he thinks will happen, or I should say other than
us or Kortni who will pay it. Because at some point that isn't going to
happen. I'm really concerned about this. Dale is to a degree because
he worries about retiring and trying to travel or something.

Which is another problem because I'm Derrick's rep payee and I have
to figure that out too. Because at this point I take him money every
week, but if we travel that would have to change.

But I digress I have time to figure that one out.

Donna