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I hope you feel better today. sorry you weren't feeling well.
bizi |
I hate having to cancel appointments, but sometimes it's just what you have to do. Your health is what's most important, and you need the rest to get better, which I hope is soon, Donna :hug::hug::hug:
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I am feeling better today. Or was till Derrick and I talked now he has
me concerned. He is coming out with Dale to spend the weekend with me. He is definitely having seizures. But I'm not sure how many or when exactly what is happening. But honestly with sleep ones I wouldn't know either. UGh, I hate this. We will work it out. I don't want his independence taken. So really have to work on this. Donna :hug::grouphug: |
I'm so sorry to hear about this Donna :hug::hug::hug:
What kind of things do you have to do when this happens? |
Well, its honestly been so long since he has had ones like this.
And more than 1 in 3 months. Which is really good for him. I will be interested in seeing what the doctor decides. I'm guessing the lamictal dosage will go up. But he is already on very little for that. Its okay. But other than that we usually take it from him. Like he thought he might have to call me at midnight, which he wouldn't usually consider after a seizure. So I knew it bothered him, and that he was worried. The numbness he used to fall asleep from. So we will see. He spent the weekend with me. I had planned on just having him call his direct support provider. But she was going to be gone Friday to Saturday some time. So I wasn't too sure I wanted to go in at midnight if necessary. Really glad for many reasons I didn't. It snowed on friday night, and then I had no heat all weekend. Have to wait till tomorrow to see if Dale can fix or a part has to be gotten. But yesterday and today we have had a small heater in the living room. And Derrick baked all day yesterday. 1 red velvet cake, 1 German chocolate(for Dan's Birthday) and two pans of brownies. And then he made dinner last night. And I made lunch of Sloppy Joe's and green bean casserole today For Dan's day. And we will have cake later. I sent the red velvet cake home with him. Its his favorite and part of the brownies. I think we surprised Dan that he wanted to make him a cake. Not that he is much of a cake eater, but he will get some. I took him back this afternoon. And we went and did some shopping. Donna :hug::grouphug: |
such a lovely family!
bizi:grouphug: |
You are quite a baker, Donna! :)
I used to be like that, and I miss it. Everything takes me soooo long now and takes too much out of me, but occasionally I will make something... then eat most of it ;) |
I used to love baking. This was all Derrick this time.
Donna :hug::grouphug: |
Hi everyone,
I haven't talked about us in a week. Wow, Derrick will be spending the weekend with me. His provider's going to be gone to spend Halloween time with her daughter and granddaughter. Then on Sunday I'll take him back and take him to bowl with his special olympic team. I'm supposed to pick Layla up to bowl with them too. She isn't having a good transition right now. So I'm hoping this will help. She just isn't getting the attention she wants to a degree. But her mental health isn't the best either. Then on Monday Derrick will go to his third Halloween party, he is the drag queen this year. He is finally getting to do somethings, so its been nice. He also is in Best Buddies and so is his friend Grace. She is going to the Arc Party on Monday too. So its nice. He is being picked up by the provider we wanted. And will have lots more ways for transportation. They take their clients to activities and do things a lot more. And even when the buses are down they will transport to work. Devin and Meluvja, seem to be having problems with Will. I'll admit he can be a handful. And I know he is still getting up at night tryign to eat. He always will. He seems to have started playing his real mom against his dad more. And of course that hurts Devin's feelings. But he has to remember Will even if not Age appropriate will be a teen next year. Its expected. Meluvja's three kids are doing well. She has to have an hysterectomy the 27th of Nov. So I will of course help all I can. Dan and Kortni, and of course cutie Harmony are doing pretty good. Saw Kortni and Harmony, on Sunday. And have seen Dan every day this week. Weird never see that much of him. Kortni has finally read up on Autism, because I'm pretty sure along with her other orthopedic problems she falls on the spectrum. WIth head banging, and her sensory issues especially. And the in her own world things. But the doctor says she is to young to test, so I started a thread and let my friends and families tell her when there kids were diagnosed. Not letting anyone but her know who it was for. I think that is helping her. But she just accepted the possibility on Tuesday so it will be a little while. She is getting first steps, speech, OT, Pt, and will get feeding therapy soon. So I also think those specialist can help her learn about it. Now about me, I'm busy and picking up clients left and right it seems. I'm enjoying working, but get so tired when I have to run around all day. So I'm watching that I take my iron, Vitamin, calcium and Vit. d. Its been an interesting week. And I even bought Derrick some new clothes yesterday when we were in town doing his meeting. Donna :hug::grouphug: |
It sounds like you and your family have been and will be busy for a while! I wish everyone the best :hug::hug::hug:
Be careful you don't run yourself into the ground... leave some time and energy for yourself, Donna. Do you ever do anything nice just for yourself? |
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