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Old 06-11-2019, 12:38 PM   #81
Dmom3005
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I know I haven't posted yet that in the next month probably
July sometime. Derrick will be getting the newest VNS the 2016
version that also monitors the heart beat. So that when it goes
up really fast, because that is considered to make a seizure probable
then the vns does a like swipe of the magnet.

And this is good because he hasn't had a way to know in the middle
of the night that he was going to have a seizure. So were hoping this
will be a good way to counter that.

I talked to VNS nurse today so she has all the permission. And is
making the contact so the appointment can be made soon.

So it will be made.

Donan
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Old 06-12-2019, 01:40 AM   #82
Mari
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That's great for Derrick!
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Old 06-12-2019, 05:06 AM   #83
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that sounds so great!
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Old 06-12-2019, 12:24 PM   #84
Dmom3005
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This has been a day from where who knows.

Anyway, the things keep going.

First the road in front of Derrick's house he is moving in is closed.

So I'm concerned about his meeting in two weeks being there.
We need to have about 6 cars, and that is about impossible.
So we could do his apartment, or the park across the street.
But the park is probably not going to have an open area.

And the apartment will either be hot or to small.

Then to top this off, I got a call this morning, my mom's house
closes this afternoon, at 4:30pm. But to top it off we were supposed
to have 30 days to make sure everything was out. We were getting
the rest of the things out for our end this weekend.
Well the other sister that is a pain sometimes. Calls me this morning,
the lawyer says we need it all out this afternoon, well gosh why
didn't they tell us that when they set the closing so everyone would
know the date changed. ANd time frame.

I live 90 minutes away or more from this house. My husband works till
4:30pm and the truck is 30 to 45 minutes away from his work.
Luckily my sister and her husband will bring the couch and love seat,
and my other brother-in-law who still has things to get out. Will try
to get our other things tonight. One of the big things is my dads
Tools. Which we don't just want to lose.

The plan had been to get together this next weekend and sort through.
Since special olympics was last weekend, and his sons graduation the
weekend before. If they really wanted to change the rules then we
should have changed the closing date to next week. THis would
have simplified things for us all.

Donna
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Old 06-12-2019, 04:49 PM   #85
bizi
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YOu have every right to be ****** off.
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Old 06-13-2019, 07:43 AM   #86
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I'm so gad that the bad weather held off, and the Special Olympics went so well!

It's great that Derrick is going to get the VNS monitor. Will the monitor lower his heart rate once it is swiped over the magnet to hopefully prevent the seizure from happening, or will he have to call medics in case a seizure is impending?

I'm so sorry about the timing of the closing. You definitely should have been given more notice. I'm glad that it seems like your sister and her husband are trying to work things out. I hope that everything goes okay... so much unneeded stress (((HUGS)))
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Old 06-13-2019, 09:44 AM   #87
Dmom3005
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Derrick is getting a whole new VNS device and all.

The new one will hopefully stop any seizure that will happen.
If it doesn't then the magnet will be used.

My sister and her husband brought the couch and loveseat.
And we all went to dinner. We bought. It was good dinner
and visiting.

My other sister that had told me we would have a month
called last night, the table and chairs are in the garage so
they can still be picked up. And their are curtains and
some tvs if anyone wants them. So if someone wants
they can get those.

Anyway, I think husband and boys are going this weekend.
Not positive. But the sister that had changed it is the
one that didn't think we should do anything. Didn't want
to help, then just changes things at the last minute.

But it still got me upset.

Donna
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Old 06-14-2019, 02:33 PM   #88
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I'm sorry for the frustrating sister. I do not blame you for being upset at all

I'm so happy about Derrick's new VNS device! It sounds wonderful! Thank you for explaining how it works
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Old 06-15-2019, 07:55 PM   #89
Dmom3005
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Not sure but with everything else going on I don't believe I told
everyone else. That I went to the ortho, and was released.

I've now got orders to make sure I don't put to much weight on
my arm but to gradually put more on it in the next couple months.

I am working to get it back to normal, it will take a while. It still
hurts a lot in some areas. But that is okay.

But anyway, I am still taking tylenol pm. Because I've got the pain
at night if I don't.

Donna
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Old 06-17-2019, 10:49 AM   #90
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I initially thought that you had broken your arm, and didn't know it was your elbow, which is really tough

I hope that your recovery goes well, and as fast as possible. I'm glad that your pain seems to be much more tolerable than it was before, tho I wish you were not in pain at all (((HUGS)))
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