Kay,


Yes, take care of yourself.





M

I guess my brother did not get to talk to my father's wife. He did not mention trying to speak to her again. I'm not going to force the issue with him at all right now, as he has enough going on already. I will call my dad today to see how he is doing.

The NP wanted me to have pulmonary function tests, but I told her that I have way too much going on right now. So, she said we could shelve that idea- for now. She prescribed Flovent, but my insurance doesn't cover it, so I had to deal with that BS. I'll be on Qvar now... a 60 day supply costs $240. I'm obviously not happy about that. I checked discount programs, and there's no real savings out there. All inhalers are really expensive now, so it could be worse. I haven't picked it up yet.

I hit the f'ing roof when this month's final Verizon bill arrived in my inbox yesterday because it was for $566, and I had already called about it twice (you get to view your estimated next bill beforehand). I called AGAIN yesterday to get it corrected, and 45 minutes later, it finally was. The bill is now $110.60 (that won't be our regular monthly bill tho).

Then I had to deal with the cable company!!! LOL
But I just had the automated system send a hit to the boxes, and chose the option to have a representative call me back afterwards to check if the error messages were gone. He said that they were, and that the cable should stop cutting in and out. So far so good.

By the time I was ready to go out to do the grocery shopping, Corey had come home, and he told me I looked and sounded too tired to be driving. I couldn't argue with that. We didn't need anything but ice cream, so for the first time in a LONG time, I went without.

I have to see my neurologist this morning, then at 1pm I have my Tysabri infusion, which takes at least 2 hours. I won't get out of the hospital until at least 3pm, which is sleeping time. There's NO WAY I'll be able to get grocery shopping done today either. I'll have to pick up a couple of things at CVS when I go get my prescription... a big waste of money.

I will have to do the grocery shopping tomorrow

I don't think I have any appointments until next Friday when I see the surgeon. That should give me some time to get my s- together...

You are so busy.

Love you.

Donna

I love you too, Donna

Well, I survived yesterday.

I have some MS symptoms that are progressing, and some that are new-ish. With everything that's been going on unrelated to my MS, my neuro floated the idea of changing my medication, but I've been on and off Tysabri since 2012, and haven't had any major relapses, so he decided we should stick with it- at least for now.
I'm overdue for an MRI of my brain, but he took mercy on me, and decided he could wait a little while before he orders one. I see him in 2 months.

I was 7 minutes away from the hospital when I got out of my neuro's office, but would have been about 45 minutes early for my appointment. So, I basically drove in a big circle to get an iced coffee and a donut, and to kill some time.

I still arrived early for my appointment to get the Tysabri infusion. When I got there, the nurse told me she couldn't give me BOTH medications (yesterday) because they were ordered by different doctors. I had no idea what she was talking about... apparently the hematologist/oncologist's office sent over an order for me to get IV iron without anyone telling me in advance.
I finished the Tysabri infusion before 3pm because they took me in early, but I have to go back on Monday to have the iron infusion. I'm not happy about it because it's yet another medical-related obligation, and I was looking forward to getting a break from all that s*** for a while (a few days at least).

I had to stop at CVS to pick up my new inhaler, coffee, and ice cream on my way home. I was so tired, I should not have been driving. I probably should not have been driving earlier in the day either. I was glad to get home, even though I was in a terrible mood. I took a 3 1/2 hour nap, and woke up less irritable.

We ordered out. I was really craving a salad or a cold vegetarian sub, but I knew that would be a bad idea, so I settled on a grilled vegetarian wrap. Cooked vegetables are usually safe, but apparently not in this case. I'm still paying for it.

If some of my posts from yesterday are off, it's just because I was so tired.

I WILL get the grocery shopping done today come hell or high water.

I am glad you got your nap in and got ice cream. freshddirect was having a sale on haagen daz but I controlled myself.
love
bobby

was this a new inhaler on top of your old one? or instead of?
On monday, I wonder what side effects (if any)you might have from the iv iron?
wonder how long they have to give it to you???hours????


bizi

I've been on 10mg of Singulair (a pill) for my asthma for years. The only inhaler I'm on now is the Qvar I just picked up from the pharmacy. It's not helping yet, but it's only been a day, and I think that it takes time to work.

Good question about the side effects of the IV iron. Holy crap! There a lot of them, and some of them are pretty bad. They range from GI pain and cramping (which I already have enough of), dizziness, low BP, and rash to anaphylaxis, swelling of the face arms, and extremities, and chest pain. The RN I had for the Tysabri infusion Friday said that it should only take an hour to deliver the iron because of the way the doctor ordered it.

I had to go back to bed yesterday morning because I was falling asleep. I slept for 4 hours, got in the shower pretty much as soon as I got up, and headed out to get the grocery shopping done.. and I finally did it!!!

I also cleaned the bathroom. I did not do the tub/shower or the floor tho. I wasn't that ambitious. I feel better because I actually DID something yesterday. I hope the iron will give me a kick in the a$* because I'm just exhausted all the time.

We absolutely have to do laundry today because we skipped last week due to Father's Day, so there is no 4 hour nap in my future, but hopefully I'll be able to squeeze a little sleep in sometime. Corey will drive.

Glad that you got some shopping done yesterday. Good luck with the laundry today. Hope corey has stopped fussing about it.
So you get the iron tomorrow. I hope that you don't get any of the side effects....You have enough on your plate as is....and pain.
(((((HUGS))))
I have laundry today as well.
bizi

Sending good thoughts for tomorrow.

Donna

Good job getting so much done. I don't always do this but since you know your iron is so low, take a break until about one week post iron infusion before you push too hard.
The iron will most likely give you some level of increased energy over the next week or so. It is so hard to tell. The adverse effects are relatively rare. I wish you had a driver for this first infusion. They will probably make you stay there to make sure nothing occurs. You know all this of course.

The green peppers in the grilled veg wraps kill my gut. Onions also. Red sweet, not so much.
That sounds really good. Sorry it did not agree with you. We revisited a local family restaurant in our small town and we're so happy to find really good food. They do carry out which is good for me.