I feel like my case manager is not leveling with me. She said assisted living facilities usually have 2 people in a room. That sounds like a nursing home. She's trying to discourage me from going into one.

She advises me to live in a one room, shared bathroom, place in another county with other people. That would be the end of some of my hobbies. It's sounds like they share the shores. I don't want to clean up after other people anymore. They have a shared kitchen. That means I'm not going to get the diet that I thought that I was going to get, and I probably will end up on dialysis.

I hate this new developement. I don't know why she dropped this idea on me on a Friday. I will be worrying about this all weekend. BF

You are right, two people in one room does NOT sound like an assisted living facility to me either. Maybe there are brochures. If it is really an assisted living facility (or something else) there should be one.
You are way too young and active to be in a nursing home, and need your own space and privacy.
You need to REALLY press her for more information and transparency.

I would not like the idea of having to share common areas with other people and splitting up chores either. You never know who you will get for a roommate(s).

But I highly doubt that there would be shared cooking, and I think you could label your food, so you would not worry about that living situation altering your diet and effecting your kidney function tho (((HUGS)))

I'm so sorry that she dumped this on you on a Friday. I would be thinking about this whole thing and my anxiety would be sky high all weekend, too

Friend

I would be asking around for assisted living arrangements with other people.
Because around here they I believe are rooms by them selves with kitchens that you can use if you want. They sometimes are in the same area's as
Nursing facilities. But they aren't in the homes themselves exactly.

They are just in the same area. So that if the person needs more care they can get it.

Donna

she doesn't know what she is talking about....
assisted living homes are not nursing homes. they are private apartments where you have your own room and you could have your cat. They have meal plans that you can purchase or not. Look into them. They can be very nice though expensive. Any where from $2K to $4K a month.
keep in tough!
bizi

I don't have that kind of money on Social Security, and Medicaid. BF

That's what would make me suspicious about her saying you may be going to an "assisted living facility."

I hope you can get some straight answers out of her tomorrow. I know that with my anxiety, I fare much better the more information I have

can you start goggling and look for places near you for people with little money? I don't know why you need assisted living.

If you have Medicaid, you should be able to get all day, daily care from an Aide. Just went on Medicaid myself and my neighbor who is housebound also is on Medicaid and has a daily Aide. We talked about this yesterday and if it wasn't for his Aide, he would be in Assisted Living.

It always happens on the eve of a weekend before you can do anything about it. I don't know why that happens, perhaps Murphy's Law?

I just found out late afternoon on Friday that I am on Medicaid, but that conflicts with the denial letter I got several months ago. Now I have to wait throughout the weekend to verify this, so I have been on pins and needles over this.

Understand about shared bathrooms and bedrooms and not having your privacy. I qualified for Section 8 in my county and am living in a county owned building. Could your case manager look into this for you?

I get it about food. I had to go on Meals on Wheels for the last 12 months and my AIC went from 4 to 6.8 and everything is starch so I gained 30 pounds as well. It's not the best food, but it's food and I try not to complain.... much.

Good luck tomorrow in finding out resources for you !!

Blue

can you ask for kosher meals? I am getting them soon. That is so scary about a1c. That is all you need besides everything else. So sorry about the weight gain. You poor thing.
fondly
bobby

Hi Bobby ~ Didn't think about asking for Kosher meals, will ask and see. Thank you !! You have such good ideas (( Hugs ))

Blue