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Well he did fine last night and we didn't have any more bleeding thankfully. Getting up early because we have a neuro appt today, just a routine check up but I am bringing up the nose bleeding issue and seeing if they want to DO anything about it while we're there, its a satelite office for a big children's hospital so they might be set up to do stuff that the ER wouldn't be, because I asked them if they were set up to cauterize and they wouldn't tell me. *Sigh*
BUt today is dose two of paxil and we'll see if it helps yet, I did feel something different yesterday, I don't think it was just in my mind either, it was like a small level of calm until this happened, then I had to down a lorazepam and I mean the full 1 mg daily dose too, and after that I was fine. I am sure today will be awful because the medical transport van we'll be taking is going to have a couple other people going and that always means waiting on other people and that they have to wait on us...I'd drive it but I am still a little too wigged out from yesterday and worried he could start bleeding and I would be alone, so no driving this hour long drive for me just yet. :p Thanks everyone for being so supportive, we were really worried about our little guy, but I think it's going to be okay, though I bet he needs his nasal passages cauterized like one of my friend's son's had to be. Jackie had his adenoids removed along with his tonsils years ago so maybe this is a result of that surgery, who knows? He's had nose bleeds before and they always scare me. Thank you everyone for your awesome support, you're the best! :hug: |
Pam
I believe that the transport with the van is a good idea. THis way you can also give all your attention to Jackie if there is a problem. I'm really impressed with the way you are handling this. I personally believe I hear the paxil talking. You seem a lot more relaxed than I have seen you in a while. Donna |
Hi Donna,
I definitely think the Paxil is helping even at day two. I just feel like you said calmer. We had no trouble today thankfully and we went to see his pediatrician too to get a referal to the Ear, Nose & Throat dr we'll have to see to get this done at. It can be done with a local anesthetic so who knows maybe they will do it right away the day we go in? I won't hold my breath on it but he definitley needs it done, she (his ped) agreed that it would be best for the ENT dr to perform it soon before he has more of these terrible nosebleeds. I am getting ready to hit the hay, I was hunting for the camera software and finally found it, so I am tired and ready for sleep. :) Thanks for the kind words Donna, it's so good to know people care about us like I know I care about you and the others here. It really DOES make a difference in how I feel, the fact people care and are wishing us well makes me feel less alone. :) |
Pam
I definately do care. ANd I really think you are doing a awesome job with him. Its a very hard job with a special needs kid. I should now I raised three. I even consider Derrick to be raised most of the time. He is 16 but to me he is very much doing so well that he is a yound adult. I am really working hard to get him to the next stage, I'm just so afraid that he wont make the progress he needs at times. But that is not the way it should be I now. donna |
It is so hard sometimes to move forward, I know how precious any progress can be. So far we're doing good this school year, Jackie is learning in class but things definitely aren't easy for him. I am really happier to have started paxil though, it IS definitely helping, I feel better, less prone to crying like I was last week. It's so hard...hard to not get worked up sometimes, but I am just doing my best and that's all anyone can ask of me. :)
I can't imagine how you did it with three kids Donna, but I know having just Jackie has me on my toes almost 24-7. I really admire you for all you've done with raising your family, you did good! :D |
So glad that you are feeling better Pamster!
(((HUGS)))) bizi |
Thanks bizi, I do feel better today, though I can feel the anxiety still the depression is lifting. :) Thanks for the hugs! :D :hug:
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I was reading on the other boards tonight Pam and read that you were going thru some particularily stressful times.
I am sorry for this and hope things settle down for you. ((((HUGS)))) bizi |
Yeah I have been really suffering the past couple weeks with anxiety and panic over some inspection we had last week, no clue if the place passed so I am still having some anxiety over it. That and the way Jackie had a nose bleed last sunday, it would NOT stop bleeding! :eek: So I was having a really anxious time then too. We're going to get his nose cauterized so I am kinda leery about it and worried about it since I doubt they will get to do it when he's awake because he's autstic. But that's just what we're going to have to do. :p
Thank you for the hugs, it really helps to know people care bizi, hugs back at you with lots of love! :hug: The good news is the T rx'd paxil for me last week, and I am feeling better now. Five days into using it I feel a lot less weepy, but still just as anxious...Hoping it will help with that because lorazepam is doing it for the moment, but I would like to stop having to take that for it if at all possible. :( |
am hoping that you get a bite on your book....crossing my fingers for you.
bizi |
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