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Old 06-24-2009, 04:38 PM #1
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Shocked Jackie had a seizure at the store!!!

OMG I am freaking out, I think he has had them at school too, we were shopping, he was pushing the cart one minute and then BOOM he crumbled to the floor!

He had this happen at school too about a year ago, I am really afraid, I was getting my phone out to dial 911 when he got back up, that helped calm me down. I don't know what could have triggered this seizure today but it scares me about the pool now. I am afraid he can't dive off the board or he might drown if he had one in the water!

I am really upset. So is Jack, too late to call his Ped Neuro doc, and I don't know if she's going to want to ramp up on the lamictal he takes 200 mgs twice a day right now, maybe he needs a bit more with his weight gain...I don't really know. But I know that I don't want to see this happen again! We were talking about weaning him off the lamictal if we saw no more seizures but this kills that right away.

Maybe he's not going to out grow them. I am so upset.
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Last edited by Pamster; 06-24-2009 at 05:37 PM.
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Old 06-24-2009, 04:55 PM #2
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Pam

Seeing a seizure is very hard. I know. I also know that you have
to live each day. So just remember he is back and dealing with things.

I would work on talking to him about how he can't dive in the pool but
maybe you could still go to the pool. Not sure though how you feel
on that.

I would definately call the neuro tomorrow. Not sure if it was 200 twice
a day or just 200 all day.

Donna
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Old 06-24-2009, 09:31 PM #3
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I think I have heard of folks taking a total of 500mg of lamictal but am not sure.
I am sorry that this happened, how scarey.
((((HUGS))))
beth
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Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 06-25-2009, 01:03 AM #4
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Dear Pam,
I'm sorry that you are dealing with this.

M.
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Old 06-25-2009, 06:01 PM #5
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So he's been okay today but man I am so worried about him. I am watching him like a hawk.
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Old 06-25-2009, 06:48 PM #6
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Awww, a seizure is so scary. I remember my son's first seizure and it was something I never want to see again. he did out grow his, they were febrile seizures. I pray the same for Jackie.

Did you get a hold of the doctor's office? Whenever my mom has a seizure now they want a blood test to check levels.

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Old 06-25-2009, 08:05 PM #7
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Nope they never returned my call so I am calling first thing in the morning. They need to get back to me right away on this because I need to see his dose increased before we refill his medication, he hasn't had a dose increase to compensate for his weight OR onset of puberty for like five years...He's been stable on 400mg a day and I think he needs jacked up a bit or something else added...I definitely am frightened by this. Thanks for the hug Sandy.
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Old 06-25-2009, 09:00 PM #8
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Pam

You definately want to have his blood level checked because 400mg
is a good dosage. But because its all he is taking it might not be enough.

Or he might need a small dosage of something else added too.

Donna
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Old 06-25-2009, 09:32 PM #9
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I really hope they get back to me tomorrow, I hate waiting! I need to know NOW what they want to do.

I don't know maybe it's something to do with his med being te generic and not brand anymore. Who knows?
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Old 06-26-2009, 12:04 AM #10
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I just wanted to buzz in and let you know that you and Jackie are in my prayers...

Seizures are soooo scary. I used to be an EMT and seizures were one thing that scared me most.

I hope you get a hold of the doctor today...


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