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dear friends
after my DND results returned and showed a 11% chance for reoccur and if i were to have chemo treatment it then drops 9% therefore the treatment doesn't make any sense with all the other things going on with my body i must do as much homework on the treatment advised 20 mg once a day for two tears and another for 5 additional years 7 year treatment |
dear friends
new meds are making feel ill so i am in laying position write later thanks much |
Eva....
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Sorry to hear medication is making you feel ill. I hope this is only temporary. Do you think the Oxycontin is the culprit. I take quite a large amount and have very little, if any, side effects. Prayin... Gerry |
Hi Eva
If you medication at least takes the pain away, I guess laying down isn't so bad. Get some rest with your feet up. Maybe you could read a bit while you rest. Sorry it is making you feel bad. You are in my thoughts tonight. ginnie
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no my dear
i am careful this Friday was a week on tamoxofin the down side hot flashes nausea and headache hoping my body will adjust and won't give me any problems see the oncologist Friday end of this week thank you for your concerns |
Hi dear Eva
I was hoping the side effects wouldn't happen to you. My house mates mother took this drug and got very little in the way of tummy trouble. How I wish you did not have to endure this. Sometimes the cure is harder than the condition. Rest as well as you can Eva. You can get help for the stomach with several different medications from your doctor. If it gets to be too much, ask him. take care....ginnie:hug::hug::hug:
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:confused:
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have you made your mammo appointment yet? have you had it done yet? concerned |
dear ginnie
thank you for your message the Tamoxifen is what is giving me the nausea it might just take a while for my body to get acclimated maybe not either way there are meds to help keep others meds down i hope you are feeling great the weather is getting soooooo nice enjoy it if you can lots of love |
Eva.......
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Hopefully your body will ajdjust shortly to the Tamoxifen. I had mentioned previously, a friend taking the med for years without any mention of side effects. When I met her, she had already been on the tamoxifen and she may have had early side effects, which by the time we were friends, were long gone. Hope you have a Blessed day. Gerry |
thank you
amen take care talk soon still have that picture need my daughter take care of that |
Hi Eva
What I was thinking is that maybe you were so worried about being nauseated, it happened. This particular drug is not like the coctails of poisens they give alot of cancer patients. The side effects supposedly are very mild. if it is making you sick to your stomach, it is not the usual side effect from my understanding. I am wondering if it is a conbination of meds. that is doing it, not just that tomoxifen. It should not make you so sick! I just hope it goes away for you, so you can feel better all the way around. It is hard enough with just one problem at a time. do feel better soon Eva. I will continue to pray for you. ginnie
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thank you ginnie
love and prayers in return lots in return |
Eva.......
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Have you spoken to your doctor about the nausea? He may be able to give you something to tide you over until your system adjusts to this medication. Blessings, (Gerry) |
dear gerry
thanks for the information and it's reason nausea comes and goes i go to see the oncologist Friday how are you feeling these days any flowers around you i miss tending to a yard filled with delicious veggies and herbs fresh stone baked bread and some good cheese yumm still find myself in the past when i would hop skip and jump accepting is what i am working on God always in control Amen |
Eva....
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Some flowering shrubs blooming early because of unusually warm weather in our area. No longer do the flower planting as I once did. Will buy a couple of larger pots already filled with assorted flowers. As you, I do miss the vegie gardens, planting seasional flowers, etc. Yes, "acceptance" is the key word. Took a while for that to happen; but now at least am able to enjoy better "what is" and pray I will make the best of each day God has given me. I only hope and pray you will soon be over nausea. Blessings, Gerry |
Hi Eva My Friend
Awakened to this morning realizing the need to give assurance and hope along with the offering of prayers in relation to this nausea and its tag alongs to bring you, your family and little pup to my focus in prayer. May God the Father lavish upon you peace, healing, means to overcome the nausea, healing and bring a moment to scratch olie behind the ears on my behalf. Blessings on yuo this day dear FRIEND,
Thank you God the Father, Thank you God the Holy Spirit, Thank you Jesus, the lamb who brought all of us the Way, Agape, Mark56:grouphug: |
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i was wondering if you would share some of spiritual medicine and knowledge on acceptance it would be much appreciated if not understood thank you |
Eva....
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I have a framed photo of my painting of the Divine Mercy on my nightstand. Every night I hold out my hands, while praying and give it "all to God". My fears, anxiety, pain and suffering, asking God to give me the strength and courage to cope and accept all that he has permitted to happen to me. I still have my days; always will....but gradually, I realized others needed me. Even though my children are married adults. How they still need their Mom. Started trying to be more cheerful, joke and smile in spite of the awful pain. I realized I had only been thinking of myself, letting this eat away at me; especially those in the medical profession; they weren't worth making myself even more sick and depressed. Then one day...Eva...it was like a cloud lifted and okay; no more vacations, no more of this and that; but "dear God; help me make the most of each and every day You give me". This was the life I have now and try not to dwell on what I can no longer do; but what I can do. What I no longer have; but do have. I also work hard at not living in the fear of what tomorrow may bring. By doing this, I am making tomorrow happen today. Today is enough without living in "fear" of tomorrow. We each really only have today. And when the tomorrows do come.... they might be filled with good things. For now....let's just get thru today!!! Eva, you have taken up your "cross" and are carrying it along with Jesus. I hear and feel it in all your posts. You are now even closer with your family than ever. I know addiction; my middle daughter suffered from cocaine addiction. She is now counseling and sponsoring many of those suffering from addiction. I know your son is battleing the disease of addiction. He so needs his mother. You have shown him that recovery is possible. Eva....your family needs you and you are such a gift to all you come in contact with. We here on NT are fortunate you have found us. You have given so many of us the knowledge that in spite of pain and suffering that; God is Good God is Love God is Hope God is present with us here and always will be Thank you Jesus for our dear Eva. (Gerry) |
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your sharing touched something my emotions bring me to conflicting tears the pain of it and the beauty of recovery thank you for sharing it means much more than you think best to you and family |
dear friends
just posting april 25th i see the reconstruction doctor my throat in my stomach already still not done the spacers are still in and haven't been filled it will be 6 weeks of course nervous no more surgeries this will be the last until then surgery only life saving till my appointment all have a blessed day |
tomorrow will be our first day at the pool
it will be interesting the weather is to be the better of the three day vacation still going to wear bathing suites that are low cut i am okay with it not bad i am certain when permanent ones are in it will be more than 50% when all is said and done i will do a 3D affect i'll see the complete healing tattoo nipples and then maybe nipple rings for the visual effect i do not regret not one moment for now I DO NOT HAVE CANCER THERE don't like that i have to take cancer meds ALTHOUGH to be honest i am actually saved from going through radiation or sit for hours as the med drip slowly into my veins i have been spared the extreme the ultimate i loose just enough hair to remind me why only GOD can answer that go to the reconstruction doctor next week till then take care of your body listen to it feel it get to know yourself all over again for me at least someone who cares |
dear friends
wednesday i go to reconstructive surgeon spacers are ready to come out well see let all know there is no sensation skin feels dead right breast had the cancer much more to it it was to be found deep within even though i felt it point naturally both different one more concave than the other opting no nipple reconstruction possible good artist who could tattoo 3D effect gosh such worries bull **** lets see what happens wednesday great for persons who endure reconstruction is a complete different ball game the tamoxifen killing me sweats again just when they stopped took me off of prozac and replaced it with lexepro we will see get your mammograms check your breasts this too must be done to men as they too can have breast cancer someone who cares |
time to come out
dear friends
it is time for the spacers to be removed and permanent balloons to go in not opting for nipple reconstruction maybe nipple rings tattoo this is not priority will do something but having spacers have magnets and are temporary they will be saline after the removal of magnets very much needed MRI'S can be done as i am going to a new doctor for my spinal cord disorder right now my children did most of the work by breastfeeding them i produced plenty of milk for my four children i pray for a smooth transition as this will be my last evasive surgery i am open to microscopic surgery as my new doctor is aware of men and women check yourself i found mine have had my mammos every year for the last 11 years it matters! |
DEAR FRIENDS
the date for breast surgery HERE COME SATURDAY JULY 28TH |
Hi Eva
God be with you as you go to surgery. My angel is visiting you right now and will hang around for extra help. ginnie:hug::grouphug:
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Is it over yet
dear friends
i have had my final surgery i am so happy no more surgery my dear friends i am still am experiencing delayed reaction i knew it used to it so 7 years of taking tamoxifen hair steady loss hope it will ease up still looks fine not a problem just an fyi my experience I FOUND THE HAIR LOSS IS EXASPERATED I'M CERTAIN BY STRESS the slow leak is slowly easing up will call him tomorrow still going thru rough patches operative word patches enough to throw me off my hormones are wacked glad i know my body i always kept saying during my first surgery i would say randomly something else is wrong something isn't right i found my lump don't stop touching only you know your body get to know it log things down and keep it pass it down to those after you history very important also hope women get or check their partner men are not exempt may you all keep healthy ask me any question if you wish someone who cares |
Hi Eva,
I do have a question. did you loose all your hair all these years? Is it coming back? I did go to church. I blubbered like a baby the whole time. ginnie:eek::hug::grouphug:
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the answer to your question yes it is still happening if you missed it my treatment was determined via the results of the breast cancer it was determined it was estrogen driven and that i was spared any liquid poison (as i call it) or concentrated radiation so therefore i had both one radical (the right) and complete removal of the left way different my breast cancer was deep rooted so much more was taken still comes in waves my treatment is tamoxifen 20mg 1 tablet daily for 7 years i am on my 5th bottle i began loosing hair about a month ago will see doctor next week don't know will ask him wednesday someone who cares |
Hi Eva
Yes I care. I have alopecia universalis. auto immune, lost my hair at 29 years old, and get it back on and off all these years. It hurts too when you loose your hair. It is a deep emotional hurt, and I am sorry you have to go through it on top of the cancer effect issues. Thanks for telling me. I make a real cool Doo rag out of t-shirts from Good will. Want one? Takes me 10 minutes to cut it out. Send me PM your address and what color you want. Would do this for you in a heart beat. ginnie
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not necessary if i loose it all as now my hair comes out quite a bit now i don't no ginnie everything is just screwed up but i am hanging on tight as you are i hope life is treating you good how are things coming along my breasts still hurt as the right one had the cancer they didn't come without problems doing my best to accepting things out of my control i know he did the best he could i see him next wednesday till then love being sent someone who cares |
reconstruction verses augmentation
dear friends
my chest look acceptable to me i call it my hiccup in the road he did the best he could he is all happy and blah blah blah but they aren't anything like augmentation at all this is what women are afraid of as tiny as that lump i found it was deep rooted to my back wall remember both are the same when removed but the cancer was in my right breast to the young mothers and all mothers to be say without any pressure it is only my opinion try if you can to give your child your breast there is a little something different and special never to take from bottle fed babies because i would hope the parent to hold their baby or babies the connection is feel the touch of the baby looking at you while feeding breastfeeding came easily i was speaking to my ex-husband on my side wiggled her way as she lay next to me on my right and began suckling all on her own my arm was under my head holding my head up like a pillow i have no nipples opt not to have them done might have tattoo or piercing to give it definition now that they have a scar that needs work like vine of small like flowers no biggie dear GOD thank you for giving me the ability to find it in the time i did now live with treatment after i took them off AMEN! ask me anything you may want to me someone who cares |
If i could .....
to express the loss
is not difficult for me my disappointment is just the tip of the iceberg my gut it has never failed me and because i did not listen to my gut i am unhappy with the end results will make the best of the matter it was my dermatologist was able to pick up the problem without any input and then she says Eva no more surgeries how worth it is it bingo she made it clear additionally she knows who he is my point go with YOUR GUT TALKING IT IS YOUR LIFE AND NO ONE KNOWS IT BETTER THAN YOU! MY ONE YEAR ANNIVERSARY January 9, 2012 had my 1st colonoscpy cleared for now thank you GOD please my message is preventative health care someone who cares |
oncoligest appointment
dear friends
dear God my brother mother Mary today oncologist appointment my attitude about the implants i could live without them really have had poopy luck i mean how can you make a doctor see what he doesn't want to see because he is the only one that does not see what i and others do so self-confidence are not in the chest but if you are going to get them done you expect first and foremost trust and a good open relationship that was my reconstructive doctor today we deal with ridding the body of cancer i am on tamoxifin going and going one and a half year on them it seems just like yesterday ironically the thing that saddens at times remember i have no REGRETS but when i get the chills the first thing i do is put my hands on my chest no nipples to get hard no sensation but i know i took the right step and Angelina has the ability to get the word out there even quicker than quick not her mother not her aunt grandmother now to have a hysterectomy bravo bravo brave is she something i think about one day at a time there are so many things mechanically going south i haven't been that lucky i ask my Lord for a miracle and go with the flow get your mammo do important things around your birthday so you don't forget sending with LOVE WILL BE BACK SOMEONE WHO CARES |
reschedule appointment
dear friends
changed appointment not feeling well physically or mentally to many things happening i need it to slow down a bit but it is priority Monday is the day the temp. here is in the 90 degree weather ginnie love ya did you get your boobs checked yet someone who cares |
Hi Eva
No I didn't do it yet. However I have my PCP appt. this month and will get the script for it. don't worry I will do it very soon. I know you care, and I know why. I am adopted so I don't know what is in my family. Will take care it. You take care of yourself, and know that I do keep you in my prayers daily. ginnie
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Hello Eva,
I care too :hug: I havent suffer with my breasts, well, they are horrible anyways hehe, but I have lost hair that wont be back and my eyes have always given me trouble, so, I know the feeling of dealing with an "organ". I have learnt that we are more than "just" an organ... we are a complete soul and spirit and, bodies can be replaced, but souls cant you know.... I just want to leave you lots of hugs !!! :grouphug: :hug: |
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my heart need a friend or a shoulder i'm here someone who cares |
dear friends
get your mammogram men and women touch yourself only you know your body it is your life went to oncologist took my blood work checked under the arms throat and tapped on certain parts of stomach had pasta getting sleepy tired results of cancer #'s till then someone who cares |
Hi Eva
I have not forgotten the breast check. I get the script on the 27th of this month. All will be well. You are wonderful to keep reminding people to do this. MEN too. My dad had breast cancer.
You are in my prayers Eva. ginnie:hug::D |
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as you are an Angel my Love too you you take good care and keep on walking that sand and let Him carry you someone who cares |
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