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Old 01-15-2018, 12:14 PM #141
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Quote:
Originally Posted by eva5667faliure View Post
Behind my right balloon I am experiencing pain
Mammo due shortly
Won’t go away
We shall see
We shall see
Me

Eva,
Keep holding on to our Heavenly Father.....He knows you have much to do.
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Old 01-23-2018, 04:18 PM #142
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Default It is a fear

What I’m feeling under my right arm pit and behind the balloon just doesn’t feel normal
My appointment with my oncologist is end of February and and I gym March
If the pain under my arm pit doesn’t subside in a day or two I will call the oncologist
As I have been taken off the tamoxifen with the bleeding and what’s happening to my hands and feet
I’ve been on it for five and a half years
What it does is shut my estrogen in my body
Now there is activity going on
And the kind of breast cancer I have is driven by estrogen
I have spotted twice since being off the tamoxifen and like now a one pimple on my face
A indicator of hormones at work
My fear is not only what I’m feeling
But that this particular kind of cancer like to metastasize to bone and lung
I need to stay positive I know but tell this brain that and with everything that has happened I don’t want it anymore
I’m so done
Holding on
Oh Heavenly Father hold me tight
Me
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Old 05-09-2018, 06:09 AM #143
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Default Went to all my appointments

Had ultrasound of empty breast area
Blood word
And my new doctor on my train
A vascular doctor had me have upper extremities of veins and arteries looked at via ultrasound
His first thought with what’s happening to my hands and feet
Be a result of my cancer drug
Tamoxifen
I have a follow up with him no that I had the test done
Hope to have answers
I experience so much pain all over my body
I just don’t talk about it anymore
I ask Heavenly Father for a miracle
Amen
Me
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Old 05-10-2018, 10:12 PM #144
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Eva,
You had mentioned having pain under your right armpit in January. You also mentioned you would be seeing Oncologist in February. Did the oncologist have any suggestion why you were having the pain issue under armpit? Also, was there concern about your going off the Tamoxifen?

Hope your new doctor can give you answers now that you have additional testing done.

Gerry

Last edited by ger715; 05-10-2018 at 11:26 PM.
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Old 05-11-2018, 05:33 AM #145
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Default Hi Gerry

It was the oncologist who took me off the tamoxifen
As his conversation were as the new vascular doctor
Patrick McGovern
Upon my first appointment with him he said the oncologist did do with concerns of clots
The general thought till I see him after the vain and arteries is although the estrogen is shut down as my cancer is estrogen driven
It is the progesterone that causes vain problems
I have been in tamoxifen for 6 years one year earlier than one would be taken off
It usually a 7 year treatment

So progesterone causes the vains to dilate and cause some complications including affecting heart

Bottom line we shall see
Will try a keep posting

So much going on
My grandchild mother
My child was released from jail yesterday
A long long ongoing problem with the father
And until she leaves him nothing will change
Just trying to take care of myself and my two who are in my care
Corissa is continuing night school for her diploma
That is priority right now
I wish she could motivate herself to work part time
But I do not focus on that
Her diploma comes first

Hoping you are doing well
As I think of you
Live
Me
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Old 05-11-2018, 10:59 PM #146
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Eva,
I had a lumpectomy on April 11th. It was an Invasive Ductal Carcinoma of the left breast. This cancer too is Estrogen Positive/driven. The cancerous mass was small; but the cells were already invasive and Estrogen fed. The biopsy shows the results of the surgery margins were clear. I see the Oncologist this Tuesday, May 15th. The surgeon said I will need either Tamoxifen or Arimidex.

The Arimidex is often for those who are post menopausal (I had a complete hysterectomy some years ago)and the Tamoxifen usually for premenopausal. The surgeon said our body /tissue still produces Estrogen even after menopause so I will still need either one of them. I am concerned since I already have so many of the problems these two medications side effects cause which both are very similar.

Really hope and pray Corissa will get herself to be the best person we know she can be. The diploma is the first step.

Gerry
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Old 05-12-2018, 03:50 AM #147
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Gerry, I’m so sad to read this, I’ve not been active much on the boards, just too tired, but this news made me wish I’d made more effort. Thinking of you dear friend.

Eva, friends and family who have been on tamoxifen (many I know of) have been in for 5 years only. I think perhaps it may differ from one country to another sometimes.

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Eva,
I had a lumpectomy on April 11th. It was an Invasive Ductal Carcinoma of the left breast. This cancer too is Estrogen Positive/driven. The cancerous mass was small; but the cells were already invasive and Estrogen fed. The biopsy shows the results of the surgery margins were clear. I see the Oncologist this Tuesday, May 15th. The surgeon said I will need either Tamoxifen or Arimidex.

The Arimidex is often for those who are post menopausal (I had a complete hysterectomy some years ago)and the Tamoxifen usually for premenopausal. The surgeon said our body /tissue still produces Estrogen even after menopause so I will still need either one of them. I am concerned since I already have so many of the problems these two medications side effects cause which both are very similar.

Really hope and pray Corissa will get herself to be the best person we know she can be. The diploma is the first step.

Gerry
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Old 05-12-2018, 04:13 AM #148
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Gerry, I am sorry to read that.

A post-menopausal friend of mine got Arimidex post-surgery.

That was six years ago and her check-ups have been fine. I hope that will be true for you as well.

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Old 05-13-2018, 08:15 PM #149
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Pam, the surgeon said the time is usually 5 years; but I have read articles that encourage a longer period of time. I'm also suppose to make an appointment with a Radiation doctor which I have not yet done. I will ask the Oncologist to suggest someone when I see her on Tuesday.

She was the Oncologist I originally saw when I had surgery for rectal cancer in 2012. I had declined chemo treatment at that time but the surgeon that did that surgery said he would accept my declining his recommendation only if I was well informed and and saw the Oncologist he recommended before my next follow-up appointment with him. The Oncologist did agree that chemo would most likely cause my PN to worsen. She wanted me to be sure to have a CEA test every 6 months which would most likely show the next area the cancer would turn up; which I have been doing. So far it has not appeared to progress.

I had not previously mentioned on NT until my 5/11 post to Eva that I had been diagnosed with breast cancer which was actually located on my annual mammogram in 2016. The radiologist said it was small and appeared to be benign. As a result he suggested I get mammograms and Ultrasounds ever 6 months to keep watch. Which I had been doing.

This past February, the radiologist suggested that I should have a biopsy done because the mass appeared to be changing. The biopsy was done at the end of February (my gynecologist said he could not feel anything there); so I was caught by surprise when I received a call the next day after the biopsy that I had Invasive Ductal Carcinoma.

My children urged me to go to Northwestern Medical Center in Chicago rather than see the surgeon in my area the gyny suggested.

Northwestern Medical Center is where I had the surgery. Even the surgeon at the Medical Center could not feel the mass so I had to have a pre-wire inserted thru Ultrasound just prior to surgery to locate the mass which was small and on the back wall of breast. Afterwards was transferred to the hospital across the street where surgery took place.

.....Had I not been getting annual mammograms; by the time this would be something the doctors could feel, it most likely would have been much worse. This is a good reason to keep up with annual mammograms for women usually starting at 40 - 50 yrs. old.

Gerry
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Old 05-31-2018, 03:53 AM #150
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Default Started to bleed again

Going for another internal ultrasound
This just won’t stop
Having all that is happening
Or should I say
Trying to keep up with my health has become like a job
It taking my real job from me is one thing
Preventive health practices show something is always up
Keeping up has become a full time thing
So many doctors
Just so many
Still need to see the vascular after the tests he ordered
Went to obgyn for routine pap just three weeks ago
My bleed began four days ago
I’m floored
Just floored
Having my breast taken
As it is driven by estrogen
Takeing me off the tamoxifen that I have been on a little over six years because of the vein problem and the vaginal bleeds damned if you do or don’t
Just so tired of it all
Seen the eye doctor
Having to go to a Reyna specialist all just s**ks
Had my mammogram done ultrasound
Seeing a dermatologist today
Come on already

Gerry thinking of you
I know you understand being tired of it all
But like you said
Can’t just let things go
What kind of an example would that be to my children
So doing what I must
Just sick of it all
Me
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