NeuroTalk Support Groups - Just need to know we're not alone

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- - Just need to know we're not alone (https://www.neurotalk.org/caregivers-support/130496-just-need-to-know-were-not-alone.html)

Quote:

Originally Posted by the beloved wife (Post 686037)

Good day!
I have just joined this group looking for some support so that I am able to continue to support my husband. He suffered several strokes in Jan. 2010 and is suffering terribly with atypical trigeminal neuralgia.
His pain is so intense and I am watching the life get sucked right out of him. He is 48 and is way too young to lie down in defeat.
Has anyone found anything that works for this pain? He has already taken Tegratol and a slew of other medications for this to no avail. He is currently taking Vicoden and Tramadol for the pain with little or no relief.
Blessings to all:
Val

My husband had this TN they call it for short and he had a MVD and has been without pain since 2011.. It started back in 2006 he took 1200 Tegratol and so many other drugs he ended up after surgery having short term memory loss from all the drugs...but today he is better...Now we are dealing with MCI mild Cognitive impartment I need support for this is why I am here....Hugs

Dear Val,

So sorry to hear of what you are going through.
I'm new here and I cannot yet post messages that contain URL web addresses. So...
please consider just Googling thefollowing national organizations to find THEIR websites.
Then see if they have a local community support group near you that you can contact.
Then consider post on their website message board the same message you posted here.

Trigeminal Neuralgia Association call 1-800-923-3608. They are in Florida

American Chronic Pain Association, Inc.

The Well Spouse Association

Best to you anr your husband.

-Ed

Ed Madara
NJ & American Self-Help Group Clearinghouses