Dear Val,

So sorry to hear of what you are going through.
I'm new here and I cannot yet post messages that contain URL web addresses. So...
please consider just Googling thefollowing national organizations to find THEIR websites.
Then see if they have a local community support group near you that you can contact.
Then consider post on their website message board the same message you posted here.

Trigeminal Neuralgia Association call 1-800-923-3608. They are in Florida

American Chronic Pain Association, Inc.

The Well Spouse Association

Best to you anr your husband.

-Ed

Ed Madara
NJ & American Self-Help Group Clearinghouses