FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Caregivers Support A place for people who are a caregiver to another to find help and support. |
Reply |
|
Thread Tools | Display Modes |
06-01-2007, 08:27 PM | #1 | |||
|
||||
Senior Member
|
I watch my daughter struggle with what feels is her very life to nest her little boy, Jonathan.
See, right after she found out that she was pregnant (unexpected surprise because she was on the pill), she also found out that she was sicker than most. She found herself at the ER several times, and tests were run at her first OB appt. They asked the typical questions...one being about the thyroid. We responded that she'd tested borderline hypothyroid as a younger teen but never enough to justify a thyroid hormone. She's also had major problems with her eye, early greying, etc. When she was younger, dr even tested her for early aging disease due to her very early development, eye problems, grey hair, skin issues, etc. When they tested her thyroid, it came back showing (they said) borderline hypothyroid. It was tested a few more times and always showed the same. Anyhow, back to the present...we explained this and they tested her thyroid. The OB called the very next day and said she was to see an endo and that they'd already set it up. Her tests showed her to be hyperthyroid and would explain alot of the way she was feeling. Cool, we thought. YAYAY she can feel better we thought. We had NO IDEA. We went to the endo and he examined her...head to toe, eyes to fingertips. The first words he said, "Well, you certainly have a goiter...three times larger than the thyroid should be to be exact." He left then came back, left and came back again...checking bloodwork tests that, by this time, had been take three times before that first visit. He sat down and got very close, uncomfortably close. I now see that he wanted us to understand and to have our full attention. His next sentence was, "Well, Jessica, not only are you hyperthyroid which we knew, you have Grave's Disease. You also have a thyroid goiter three times larger than the thyroid should be. On top of that you have Grave's Opthalmopahty. You never knew this??? This is your first pregnancy??? You're sure???" He then stated that getting this pregnancy to birth would be difficult. We later found out that many miscarriages can occur...up until the 7th month...then premature delivery. He explained the risks to the baby, what daughter was going to have to do, how things might affect her and the baby, etc. He then said that she may have to have surgery while pregnant, but he's only had to do that once so far...he doesn't see that happening. This was the beginning of a wild, confusing, almost crazy ride...one that we're still on. Through this all, she's now on her second bout with hepatitis (due to the hyperthyroidism) and now they're concerned for her heart and making sure it hasn't been damaged due to everything but mostly the never-ending sinus tachycardia and another type of sinus arythmia (sp?). She increasingly extremely weak, dizzy, short of breath to just go to the bathroom and pee. Taking a shower leaving her in a lump of tears until she recovers. They were able to get her counts, liver, almost everything but the heart stuffs stabalized and then out of the blue her heart started really going crazy fast, bad palpitations and skipping with pain and tightness. They tested her again and she more hyperthyroid than her counts have ever shown to date. She's been taking this med...PTU...as directed and it's not even approved for pregnancy. If they can't get her stabalized, she's looking at 1) surgery while she's pregnant or 2) making the decision whether the baby would do better outside or inside the womb. She's only 27 weeks. She's currently having all kinds of tests and dr's appts...endo, OB, cardio with the ER in between. The biggest concern would be if little Jonathan shows tachycardia in the womb. If that gets severe enough it could compromise his blood flow and damage. He's not shown that at all. If daughter's antibodies from this auto-immune disease cross the placenta, they baby could be born hyperthyroid, with an enlarged thyroid, need meds, etc. If the PTU crosses the placenta, he could be born hypothyroid, need meds, etc. My daughter is living a nightmare that she couldn't have thought up in her wildest dreams. She's the strongest person I know...hands down. She doesn't feel it and is clearly traumatized from all this. Please send her thoughts and prayers. During this time, my oldest found out she was pregnant as well. She excitedly took me to dinner to tell me. Five days later she called me frantic as she found out she was miscarrying. The very next month she was pregnant again. Please send thoughts and prayers that her pregnancy does well for her and her baby. I needed to let you all know where I'm at. I appreciate any thoughts and prayers that can be sent. It's day to day here, alot of days just maintaining, some getting blown away but trying to count our blessings as well. My boy (my nephew that I've had since just before his second b'day...for about 2 1/2 years now) is a blessing. Much love, KD
__________________
<center> . From the caterpillar emerged ~Strong in flight, beautiful to the eyes, movement laced with grace~ The butterfly **KD** </center> Last edited by kimmydawn; 06-01-2007 at 09:26 PM. |
|||
Reply With Quote |
06-01-2007, 09:30 PM | #2 | |||
|
||||
Legendary
|
Thankyou for the redirect from Sanctuary. I may have missed your message today otherwise.
What a shocking time your daughters are having. You and your family are in my thoughts, KimmyDawn. Thankyou for the update, I was beginning to become very concerned that there had been another turn for the worse. Keep strong and know that many people even very far away are thinking of the girls, the baby and of you. |
|||
Reply With Quote |
06-01-2007, 09:32 PM | #3 | ||
|
|||
Member
|
((((((Kimmy)))))),
I don't even know what to say Except, that I'll be praying for your two girls and your precious grandbaby boy to come through this time safe and healthy. I can't even imagine how much your Mother's Heart is aching now. It sounds like Jessica has a very good doctor now. I pray that The Universe sent her to him because he has the knowledge and the skill to intervene and prevent any more problems. I'll be praying for ALL your little ones, Kimmy. And you, too, ((((((Kimmy)))))) -- I pray that you'll be able to stay strong and healthy to help your daughters and your grandbaby boy and I pray that you'll witness four miracles. BIG HUGS (and blessings for all of you) Barb |
||
Reply With Quote |
06-01-2007, 11:43 PM | #4 | ||
|
|||
Junior Member
|
Kimmydawn, I understand and will pray for all of you. We love our children so much. I know there isn't anything you wouldn't do for them. Please try to take a little time for yourself.
|
||
Reply With Quote |
06-02-2007, 12:27 AM | #5 | ||
|
|||
Senior Member
|
This is a very hard time honey,you are in my prayers as well as your
daughters the whole family. Be strong your so tired when our children hurt we do to.. Thinking of you Sue |
||
Reply With Quote |
06-02-2007, 12:28 AM | #6 | ||
|
|||
Yappiest Elder Member
|
you know i'm here for you. i'm good at distracting you...so im me when you need a brain vacation.
__________________
. |
||
Reply With Quote |
06-02-2007, 05:49 AM | #7 | |||
|
||||
Administrator
Community Support Team
|
Kimmy
you know my prayers are lifted for you and for daughters, and for the precious lives growing in their wombs
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
Reply With Quote |
06-02-2007, 07:47 AM | #8 | ||
|
|||
Junior Member
|
thinking of you all in prayer
|
||
Reply With Quote |
06-02-2007, 12:44 PM | #9 | ||
|
|||
Grand Magnate
|
KD.... .... you are such an awesome mom and I know your daughters must take much comfort in that. I have you in my prayers.
|
||
Reply With Quote |
06-02-2007, 06:38 PM | #10 | |||
|
||||
Wise Elder
|
I'm praying for all of you courageous women.
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
We're not in the 1940's anymore! | Cerebral Palsy | |||
Cant Take The Pain Anymore Help | New Member Introductions | |||
Can't do this anymore | Spinal Disorders & Back Pain | |||
I Can't Handle It Anymore, I Am Done | Bipolar Disorder |