Go Back   NeuroTalk Support Groups > >

Caregivers Support A place for people who are a caregiver to another to find help and support.

caregiver & wife to husband who suffers from Chiari Malformation

Thread Tools Display Modes
Old 10-06-2017, 03:42 PM   #1
Katrina Huhtala
Newly Joined
Join Date: Oct 2017
Location: Edmonton, Alberta
Posts: 3
Default caregiver & wife to husband who suffers from Chiari Malformation

If anyone could help me understand how to accept that my husband has a disease (Chiari malformation), how do I cope, how do I help him and us. My husband was diagnosed back in 2000with Chiari, he has under gone 2 decompression surgeries, we have raised our son together, we know that he has this disease, but we have never really addressed it until 2 months ago when he "admitted" to having the disease.
I have recently also have come to the realization that I am his caregiver before his wife.
I never understood before why I "explode" every 3 months until I started doing more research.
During the last year, our marriage has been rocky and that is due to me, which I know is totally unfair to my husband, I know he is doing the best he can daily. He has been working daily, been a rock for me when I have needed it and has been involved in our sons sports, and raising of him.
We are both in our 40's, and have another surgery to look forward too . My husband will be going to get his neck fused I believe within the next few months as the decompression surgeries have left a build up of scar tissue which is now wrecking havoc on his neck. His spinal column has gone from 13mm to 8 mms and he suffers from bulging discs, disc degenerative disorder and arthritis. His neurologist has told him that if he looses any functions or has numbness (which he does daily) to get into the ER immediately, said that to him a year and a half ago and we have been living on eggshells since. Thankfully his pain specialist has pushed forward for another MRI which we get the results on Tuesday.
I am looking for anyone or support group to be able to talk to someone so that I may be able to help my husband and not hinder him anymore with my emotional nonsense as he doesn't need that as well.
Thank you to those who have read this, hoping someone out there is maybe going through what I am going through and maybe we can be supportive to each other.
Have a fantastic thanksgiving weekend 😊
Katrina Huhtala is offline   Reply With Quote

chiari, daily, disease, husband, months

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Hi :) chiari malformation.. please help rxyqck06 Arnold Chiari Malformation & Syringomyelia 4 03-18-2013 04:27 PM
Can chiari malformation come and go? Bret Borth Arnold Chiari Malformation & Syringomyelia 2 03-18-2013 04:20 PM
chiari Malformation Barbie Morgan Arnold Chiari Malformation & Syringomyelia 5 01-01-2012 07:58 AM
What exactly does this mean ? Chiari Malformation michelleex Arnold Chiari Malformation & Syringomyelia 4 05-06-2010 01:30 PM
New to RSD and Chiari I Malformation radmom32 New Member Introductions 4 01-03-2010 10:57 AM

All times are GMT -5. The time now is 01:50 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy