Caregivers Support A place for people who are a caregiver to another to find help and support.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-12-2009, 01:37 AM #1
tied's Avatar
tied tied is offline
Member
 
Join Date: Sep 2006
Location: TX
Posts: 507
15 yr Member
tied tied is offline
Member
tied's Avatar
 
Join Date: Sep 2006
Location: TX
Posts: 507
15 yr Member
Default how to communicate

my stepmom has lost most of her hearing to the cancer. she was too sick to keep the appointments that might have helped her and now she can't leave the bed.

she has gotten some e-mails i enlarged to 24 font. she could see them yesterday but not today. she can't operate the arrow keys to read the message. she says when she turns her head the left eye gets blurry. she hoped that meant the end was near but the nurse said no. he thot he was cheering her up but she was depressed - not the answer she wants.

she is not able to write. she can talk and we can understand some of it. she is afraid and we can't be sure how much she understands. she tells us she wants it (life) to be over. she asks for candles to be burned.

kitchen drain hopelessly clogged we are now the bucket brigade.
tied is offline   Reply With QuoteReply With Quote

advertisement
Old 03-12-2009, 02:06 AM #2
Twinkletoes's Avatar
Twinkletoes Twinkletoes is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Twinkletoes Twinkletoes is offline
Grand Magnate
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Default

I'm so sorry, (((tied))). That has to be darn tough for you to try to figure out how best to help her.

What kind of cancer does she have? Has she been sick long? How old is she?

Sorry, so many questions, but just trying to understand your situation a little better. Don't know if I can help, but my Dad had cancer recently (lymphoma).

Bless you for taking care of your step-mom.
__________________
Rochelle
.



.


I've lost my mind ... and I don't miss it!


LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF!
Twinkletoes is offline   Reply With QuoteReply With Quote
Old 03-12-2009, 10:07 AM #3
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

even if you feel that you havent understood what she is saying, or that she understands you, a hand being held is universal. To just sit with her, and hold her hand and speak to her means so much. Of course she is scared, and of course she is tired, but sometimes just having a hand to hold, and someone to sit beside you means so much.

I wish I had some magic dust to sprinkle over all those in pain or anxiety. Like the kind I used to scare monsters away when my children were little. A sprinkle over there beds, and they would take a deep sighing breath, and tuck in.

Hang in there.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
Old 03-12-2009, 04:52 PM #4
tied's Avatar
tied tied is offline
Member
 
Join Date: Sep 2006
Location: TX
Posts: 507
15 yr Member
tied tied is offline
Member
tied's Avatar
 
Join Date: Sep 2006
Location: TX
Posts: 507
15 yr Member
Default a little more info

thanks dejibo & twinkletoes.

she was diagnosed with ovarian cancer last march at 83 yr old. in nov she had hysterectomy. for xmas the cancer obstructed the intestines. in spite of chemo she worsened. the obstruction is now total.

gotta go we are dealing with her wants for who gets what jewelry. lots of handholding today.
tied is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Understanding How Neurons Communicate May Help Treat Brain Disorders Stitcher Parkinson's Disease 0 07-21-2008 10:29 PM
Decatur couple use eye blinks, mouth twitches to communicate BobbyB ALS 0 09-06-2007 08:18 AM
How can I get Docs to communicate? dahlek Peripheral Neuropathy 11 01-04-2007 05:15 PM


All times are GMT -5. The time now is 01:00 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.